Current Meetings

Annual Alliance Meeting

The International Alliance holds the Annual Alliance Meeting to provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organisational development and planning, patient care, and funding, as well as the role and activities of the International Alliance and its Board of Directors.

As an addendum to the Alliance Meeting, we invite the host association to organise a free, open Ask The Experts event, which allows local people living with ALS/MND and their carers attend an afternoon of presentations by ALS/MND experts and then participate in a question and answer session. Ask The Experts takes places on the afternoon of the second day of the Alliance Meeting.

Registration will open later in 2017. Please stay tuned!

Allied Professionals Forum

The International Alliance also holds the annual Allied Professionals Forum. The APF functions as an educational and training forum for healthcare professionals who work with ALS/MND. This forum offers health care providers from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. Every year, this meeting is generously supported by The ALS Hope Foundation.

Registration will open later in 2017. Please stay tuned!

International Symposium on ALS/MND

Both the Annual Alliance Meeting and the APF coincide with the International Symposium on ALS/MND, an annual event organised by our colleagues at the MND Association of England, Wales and Northern Ireland. The Symposium is the single largest medical and scientific conference on ALS/MND.

For more information, visit www.mndassociation.org/symposium.

Upcoming: Boston, USA, December 2017

The 2017 Alliance Meeting, Allied Professionals Forum and Symposium will be held at the Westin Boston Waterfront in Boston, MA, USA. This year’s meetings are generously hosted by ALS Therapy Development Institute and ALS Hope Foundation. Use the toggles below for details.

Host Organisation:

ALS Therapy Development Institute
300 Technology Square
Suite 400
Cambridge, MA 02139
+1 617-441-7200
info@als.net

ALS Hope Foundation
P.O. Box 40777
Philadelphia, PA 19107
+1 215-568-2426
info@alshopefoundation.org

Venue Information:

Westin Boston Waterfront
425 Summer Street, Boston, MA, 02210, United States
Phone: +1 617-532-4600 

Hotel Information:

Hotel information for 2017 is listed on the MND Association’s website. Please note that hotel rooms are available on a first come, first served basis. Book early to guarantee your spot!

Accessible rooms are also available on a first come, first served basis. Book your room early and contact the hotel directly to reserve an accessible space.

If you need any specialised disability equipment for people with ALS/MND on-site in Boston, please contact our local host association, ALS TDI. Their staff can help you find equipment locally, but you must get in touch at least 6 weeks before the Meeting.

25th Annual Alliance Meeting

5-6 December 2017

 

The Annual Meeting of the International Alliance of ALS/MND Associations brings together ALS/MND associations from around the world to share initiatives and develop strategies for fighting ALS/MND and serving people who live with the disease. Attendance is encouraged for all Alliance members, and people living with ALS/MND are welcomed as participants or observers.

The Ask The Experts session will be organised by ALS TDI and the ALS Hope Foundation, and information can be found here or on their websites as it becomes available.

We encourage all of our members to submit a presentation proposal to be considered for inclusion on the 2017 Alliance Meeting programme agenda. Presentations are limited to Alliance members only. The deadline to submit presentations is 1 September annually. A link will appear here after the  Call for Presentations has been distributed. Please stay tuned.

The Alliance Meeting immediately precedes the 15th Allied Professionals Forum and the 28th International Symposium on ALS/MND and will be held in Boston, MA, USA.  The Alliance Meeting schedule is as follows:

  • 4 December 2017 – Alliance Board of Directors Meeting (Board of Directors only)
  • 5 December 2017 – Annual General Meeting
  • 5-6 December 2017 – Annual Alliance Meeting
  • 6 December 2017 (afternoon) – Ask The Experts

At the discretion of the Board of Directors, the Alliance offers Alliance Support Grant funding to assist members who would not otherwise be able to afford to attend the Annual Alliance Meeting. Members can apply online. The deadline is 15 August annually.

If you’d like more information about the Annual Alliance Meeting, please contact Rachel Blanton, the Alliance Coordinator, with your questions.

15th Annual Allied Professional Forum (APF)

7 December 2017

The Allied Professionals Forum is focused on practice and experience for health professionals in the care and support of people living with ALS/MND. During the APF, health professionals from around the globe come together to share their practical knowledge and experiences, with a mission to improve the quality of care for people living with ALS/MND worldwide.

The Call for Abstracts will be distributed in March/April 2017. Information will appear here as it becomes available.

28th Annual International Symposium on ALS/MND

8-10 December 2017

The 27th Annual International Symposium on ALS/MND is organised by the MND Association of England, Wales and Northern Ireland in cooperation with the International Alliance of ALS/MND Associations.

The International Symposium on ALS/MND is a unique annual event which brings together leading international researchers as well as health and social care professionals to present and debate key innovations in their respective fields.

The Symposium is planned as two parallel meetings, one on biomedical science and the other on research and advances in the care and management of people affected by ALS/MND. Joint sessions consider issues of mutual concern, challenging current views and practice.

For information about the Symposium, or to learn about submitting an abstract, visit the Motor Neurone Disease Association’s website.