Associação Brasileira de Esclerose Lateral Amiotrófica (ABrELA)

(ABrELA)

Full Member, Brazil

Region covered:

Brazil (principally southeast states of Sao Paulo, Rio de Janeiro, and Minas Gerais)

Branches/chapters:

1

Date founded: 13 March 1998

Contacts

  • Acary Souza Bulle Oliveira – Founder and President
  • Tatiana Mesquita e Silva – Director
  • Miguel Mitne Neto – Scientific Director
  • Elica Fernandes – Executive and Social Manager

Address:

Rua Estado de Israel,
899 - Vila Clementino
04022-002 São Paulo - SP Brazil

Phone:

55-11-5579 4902

Fax:

55-11-5579 2668

Email:

abrela@abrela.org.br

Website:

www.abrela.com.br

Activities

Associação Brasileira de Esclerose Lateral Amiotrófica (ABrELA) Activities

  • Personal and telephone support
  • Social service attendance
  • Registration of ALS patients
  • Performing social and humanitarian activities
  • Bimonthly meeting support – information about the disease and treatment for patients, caregiver, familial and health professional
  • Co-ordinate volunteers to provide support and raise funds
  • Loan of disability aids and equipment
  • Promoting annual national symposium on MND/ALS
  • Information (booklets, publication, internet)