Asociación Española de Esclerosis Lateral Amiotrófica (ADELA)

(ADELA)

Full Member, Spain

Region covered:

Spain

Branches/chapters:

1

Date founded: May 1990

Contacts

  • Adriana Guevara, President

Address:

C. Emilia, 51 - Local
28029 Madrid

Phone:

+34 91 311 3530

Fax:

+34 91 459 3926

Email:

adela@adelaweb.com

Website:

www.adelaweb.com

Activities

Asociación Española de Esclerosis Lateral Amiotrófica (ADELA) Activities

  • Provides information and advice to people with ALS/MND and their families
  • Coordinates activities of volunteers providing support and raising funds
  • Supports network of regional care advisors in advising families and professionals
  • Serves as a link for nationwide equipment loan scheme providing communication aids, chairs, bed elevators, etc
  • Provides home care support
  • Forms public opinion (newspapers, TV, Internet)
  • Raises awareness of the disease
  • Conducts conferences and courses (people with ALS/MND and their families, and health professionals)
  • Provides emotional support to specialists, including psychologists
  • Maintains contact with 4000 people with ALS/MND