Associação Pró-Cura da ELA (ALS Pro-Cura Association)

Full Member, Brazil

Region covered:

Brazil

Branches/chapters:

1

Contacts

  • Jorge Camillo Abdalla Jr., Vice-President; Sandra Elene Mota Gomes, Director

Address:

SQN - 108 Block H
Apt. 405
Asa Norte, Brasília, DF, CEP 70744-080

Phone:

+55 11 3294-3498

Fax:

+55 11 3885-2946

Email:

contato@procuradaela.org.br

Website:

procuradaela.org.br

Facebook:

www.facebook.com/procuradaela2

Twitter:

twitter.com/ProCura_da_ELA

Activities

Associação Pró-Cura da ELA (ALS Pro-Cura Association) Activities

  • Promote social assistance, by supporting patients and ALS family;
  • Promote ALS information to society through videos, books, periodicals, electronic media (Internet, social networks), flyers, reports, studies, articles, lectures and seminars;
  • Dissemination of studies and scientific researches related to ALS and rare diseases in general to Pro-Cura´s group;
  • Events organization for health professionals and caregivers about ALS and its orientations;
  • Promote the property, social and collective rights protection;
  • Encourage and defend the law improvement that lead to the achievement of ALS goals;
  • Promote and encourage the partnership, dialogue and solidarity between different social groups, participating together with other entities that pursue common interests.