Australia*
F | Full Member of the International Alliance |
Motor Neurone Disease Association of Australia Inc.
Carol Birks and David Ali, Alliance Representatives
Ralph Warren, Chairman/President
MND Australia
P.O. Box 785
Gladesville NSW 1675
Australia
Tel: +61 2 9816 5322
Fax: +61 2 9816 62077
E-mail: mndaa@mnd.asn.au David.Ali@dhs.vic.gov.au
URL: http://www.mndaust.asn.au
Region Covered: | Australia |
Date Founded: | 1991 |
Branches/Chapters: | 7 State and Territory Associations |
Activities
- Represents member organisation in national issues.
- Represents Australia in global ALS/MND issues, through the International Alliance
- Undertakes development in national resources, particularly literature
Leaflets: MND Some Facts & More Facts (endorsed by the Australian Association of Neurologists) Kennedy' Desease, Guidelines for Predictive Testing for Familial MND - MND A Problem Solving Approach (Adapted with permission by the Royal Australian Australia College of general practitioners) - Funds national research project.
- Acts as a clearing house for sharing State initiatives
- Promotes awareness of MND, particularly to Federal Government, and via national media, especially during Motor Neurone Disease Week and ALS/MND Global Awareness Day (21 June)
Services from member organisations include:
- Personal and telephone support
- Information (print, Internet and direct, including newsletters)
- Needs identification and co-ordination of services delivery to clients
- Loan of disability aids and equipment
- Education for health profesionals and other service delivery to clients
- Member meetings, via a network of metropolitan and rural support group
- Promoting awareness about MND to State Gobvernments and the general community