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Australia*

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MNDAA - MNDRI

F

Full Member of the International Alliance

Motor Neurone Disease Association of Australia Inc.

Carol Birks, National Executive Director
Helen Sjardin, Chairman/President
Rodney Harris, Alliance Representative

MND Australia
Locked Bag 5005
Gladesville NSW 1675
Australia

Tel: +61 2 9816 5322
Fax: +61 2 9816 62077

E-mail: mndaa@mnd.asn.au
URL: http://www.mndaust.asn.au

Region Covered:

Australia
MNDAA is an umbrella organisation for MND Associations in six Australian States and one Territory. Associate members are the MND Research Institute of Australia and the MND Association of New Zealand.

Date Founded:

1991

Branches/Chapters:

7 State and Territory Associations
2 Associate member organisations

Activities

  • Represents member organisation in national issues.
  • Represents Australia in global ALS/MND issues, through the International Alliance
  • Undertakes development in national resources, particularly literature
    Leaflets: MND Some Facts & More Facts (endorsed by the Australian Association of Neurologists) Kennedy' Desease, Guidelines for Predictive Testing for Familial MND - MND A Problem Solving Approach (Adapted with permission by the Royal Australian Australia College of general practitioners)
  • Funds national research project.
  • Acts as a clearing house for sharing State initiatives
  • Promotes awareness of MND, particularly to Federal Government, and via national media, especially during Motor Neurone Disease Week and ALS/MND Global Awareness Day (21 June)

Services from member organisations include:

  • Personal and telephone support
  • Information (print, Internet and direct, including newsletters)
  • Needs identification and co-ordination of services delivery to clients
  • Loan of disability aids and equipment
  • Education for health profesionals and other service delivery to clients
  • Member meetings, via a network of metropolitan and rural support group
  • Promoting awareness about MND to State Gobvernments and the general community

 

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A

Associate  Member of the International Alliance

Motor Neurone Disease Research Institute of Australia Inc.

Professor Dominic Rowe, Chairperson
Janet Nash, Executive Officer

P.O Box 990 Gladesville NSW 1675 Australia.
Tel: International +61 2 8877 0990
Fax: International +61 2 9816 2077

Web site: http://www.mndresearch.asn.au
E-mail: info@mndresearch.asn.au

Region Covered:

Australia

Date Founded

November 1998

Branches/Chapters:

none

Activities

Promote and fund research projects specifically for MND

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