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NM | Non-Member of the International Alliance |
Associação Brasileira de Esclerose Lateral Amiotrófica (Amyotrophic Lateral Sclerosis Brazilian Association) – ABrELA
Acary Souza Bulle Oliveira – Founder President
Abrahão A.J. Quadros – President Director
Helga C.A. da Silva – Scientific Director
Elica Fernandes – Co-ordinator
Rua Pedro de Toledo,
377 - Vila Clementino
04939 031 São Paulo Brazil
Tel: 55 – 11 – 5569 4902
Fax: 55 – 11 – 55792668
Email: abrela99@hotmail.com.br
Website: www.abrela.com.br
www.tudosobreela.com.br
Region Covered: | Brazil (principally southeast states of Sao Paulo, Rio de Janeiro, and Minas Gerais) |
Date Founded: | 1998 |
Branches/Chapters: | 1 |
Activities
- Personal and telephone support
- Social service attendance
- Registration of ALS patients
- Performing social and humanitarian activities
- Bimonthly meeting support – information about the disease and treatment for patients, caregiver, familial and health professional
- Co-ordinate volunteers to provide support and raise funds
- Loan of disability aids and equipment
- Promoting annual national symposium on MND/ALS
- Information (booklets, publication, internet)