International Alliance of ALS/MND Associations
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Denmark*

Jette Møller, Alliance Representative

Kongsvang Allé 23, DK-8000 Aarhus C, Denmark

Tel: International +45 89 48 22 22
Fax: International +45 89 48 22 12

E-Mail: reception@muskelsvindfonden.dk
E-Mail: jemo@rcfm.dk
Web: http://www.muskelsvindfonden.dk

Activities

• Arranging and supporting national and international meetings for people with ALS and their spouses
• Arranging courses for people with ALS, their families and helpers
• Devising and promoting standards of respiratory and practical care
• Setting up support groups

Founded Rehabilitation Centre for Neuromuscular Diseases witch offers the following activities for the Danish population with ALS:

ALS-consultants providing following tasks:

• Ensure that families with ALS receive the best possible care
• Offer advice and information for health and social care professionals and people affected by ALS/MND
• Produce leaflets and publications about the disease and good practice in relation to ALS
• Arrange home visits and information meetings with local authorities
• Arrange courses and theme meetings for persons with ALS and their families
• Coordinate support and treatment of ALS patients with the ALS team in hospitals
• Carry out research and developmental work in relation to rehabilitation of ALS/MND patients

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