Motor Neurone Disease Association of South Africa

Full Member, South Africa

Region covered:

The Republic of South Africa

Branches/chapters:

2

Date founded: February 1991

Contacts

  • Dr Franclo Henning, Chairman
  • Rina Myburgh, Secretary

Address:

P.O. Box 789
Howard Place
Western Cape 7450
South Africa

Phone:

+021 531 6130

Fax:

+021 531 6131

Email:

mndaofsa@global.co.za

Website:

www.mnda.org.za

Activities

Motor Neurone Disease Association of South Africa Activities

We provide two sets of leaflets – one for patients and families and one for professionals.  We publish a quarterly newsletter available to patients, families, professionals and all interested parties.  We run an equipment loan scheme and advise on equipment needed.  We counsel the patient and family and help create a team of supporters to surround the patient and family.  We address institutions, Hospices, Rotary Clubs, Social Workers etc on MND – what it is, who it affects etc.  We try to promote public awareness, although our day-to-day task is to try to keep abreast of the problems our patients have, as we are as yet a small group of people in a vast country.