Muskelsvindfonden

Full Member, Denmark

Region covered:

Denmark

Branches/chapters:

2

Date founded: 1971

Contacts

  • Jens Spanfelt - Alliance Representative

Address:

Kongsvang Allé 23
8000 Aarhus C, Denmark

Phone:

+45 89 48 22 22

Fax:

+45 89 48 22 12

Email:

info@muskelsvindfonden.dk

Website:

www.muskelsvindfonden.dk

Facebook:

da-dk.facebook.com/muskelsvindfonden

Activities

Muskelsvindfonden Activities

  • Arranging and supporting national and international meetings for people with ALS and their spouses
  • Arranging courses for people with ALS, their families and helpers
  • Devising and promoting standards of respiratory and practical care
  • Setting up support groups

Founded Rehabilitation Centre for Neuromuscular Diseases witch offers the following activities for the Danish population with ALS:

  • Ensure that families with ALS receive the best possible care
  • Offer advice and information for health and social care professionals and people affected by ALS/MND
  • Produce leaflets and publications about the disease and good practice in relation to ALS
  • Arrange home visits and information meetings with local authorities
  • Arrange courses and theme meetings for persons with ALS and their families
  • Coordinate support and treatment of ALS patients with the ALS team in hospitals
  • Carry out research and developmental work in relation to rehabilitation of ALS/MND patients