Netherlands*
F | Full Member of the International Alliance |
Vereniging Spierziekten Nederland (VSN)
ALS Diagnostic Support Group
Ria Broekgaarden, President
van Heutszlaan 6, 3743 JN Baarn, The Netherlands
Tel/Fax: + 31 33 480-2016
E-mail: vsn@vsn.nl
website: www.vsn.nl
Region Covered: | The Netherlands |
Date Founded: | September 1967 |
Branches/Chapters: | 10 regions 13 Diagnostic Support Groups |
Activities
- Stimulating research
- Publishing information about the disease MND/ALS and medical developments
- Organising information meetings
- Publishing a quarterly newsletter
- Promoting contact and co-operation with sister organisations in other countries
AM | Associate Member of the International Alliance |
Stichting ALS Nederlands
Monique van Bijsterveld
Madelon Swenker
Loolaan 31-A
7314 AB APELDOORN
The Netherlands
Tel: +31 55 5266 500
Fax: +31 555 5266 501
Email: info@stiching-als.nl - Madelon@m-v-b.nl
Website: www.stiching-als.nl
Region Covered: | The Netherlands |
Date Founded: | 1 January 2005 |
Branches/Chapters: | 4 |
Activities
- Granting (financial) support to and promotion of research to causes of ALS and research to cure or prevent the disease
- Increase of available knowledge in this area by stimulating scientific researchin a broad sense, particularly aimed at the cause and the prevention of ALS, but also on treatment and rehabilitation of patients.
- Making available information on the causes and treatment of ALS.
- Promotion training of experts both in the medical and non-medical disciplines and promotion of additional studying to doctors and others involved in care of patients
- Initiate and maintain contacts with institutions, organisations and agencies which can contribute to the fight of ALS/MND.
- Initiate and maintain contacts, and cooperate with pharmaceutical companies in areas where they contribute to the fight of ALSMND
- Doing advocacy for people with ALS in the broadest sense of the word.
- Maintain a knowledge centre on ALS.
- Stimulate awareness of ALS.
- Initiate, manage, develop funds to support all aforesaid objectives
- All other activities that contribute to the goals and objectives goals and objectives.
The foundation tries to reach these goals and objectives by all legitimate resources, such as,
- Acquiring and invest reinvesting resources, and securities and its revenues.
- Acquiring donations, legacy and heritages.
- Fund raising in a broad sense of the word.
- Granting benefits or supply loans to persons or institutions operative or doing research in the field of ALS/MND.