Spain*
F | Full Member of the International Alliance |
Asociación Española de Esclerosis Lateral Amiotrofica (ADELA)
Adriana Guevara, President
C/Hierbabuena, nº 12 (bajo) 28039 Madrid, Spain
Tel: +34 91 311 3530
Fax: +34 91 459 3926
Email: adela@adelaweb.com
Web site: www.adelaweb.com
Region Covered: | Spain |
Date Founded: | May 1990 |
Branches/Chapters: | 0 |
Activities
- Provides information and advice to people with ALS/MND and their families
- Coordinates activities of volunteers providing support and raising funds
- Supports network of regional care advisors in advising families and professionals
- Serves as a link for nationwide equipment loan scheme providing communication aids, chairs, bed elevators, etc
- Provides home care support
- Forms public opinion (newspapers, TV, Internet)
- Raises awareness of the disease
- Conducts conferences and courses (people with ALS/MND and their families, and health professionals)
- Provides emotional support to specialists, including psychologists
- Maintains contact with 4000 people with ALS/MND
F | Full Member of the International Alliance |
Fundacion Espanola para el Fomento de la Investigacion de la Esclerosis Lateral Amiotrofica (FUNDELA)
Teresa Salas Campos, Co-ordinator
Calle Sinesio Delgado, 10-28029 Madrid
Tel: + 34 91 453 2595
Fax: +34 91 733 6614
Email: fundela@fundela.info
Web site: www.fundela.info
Region Covered: | Spain |
Date Founded: | September 2002 |
Branches/Chapters: | 0 |
Activities:
- Total or partial projects and investigation financing
- To propagate updated scientific and clinical knowledge of the illness by way of realisation and/or sponsorship of conferences, trainings, editing books and magazines and scholarships for investigation or study
- Actions to make society aware and conscientious of the social-sanitary problems caused by this illness in order to procure donations from public and private institutions for investigation and for improving the quality of life of patients
- Proactive and mutual collaboration with associates or other organizations with the same objectives as the Foundation in order to achieve them sooner