International Alliance of ALS/MND Associations
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Spain*

Asociación Española de Esclerosis Lateral Amiotrofica (ADELA)

Adriana Guevara, President

C/Hierbabuena, nº 12 (bajo) 28039 Madrid, Spain
Tel:    +34 91 311 3530
Fax:    +34 91 459 3926
Email: adela@adelaweb.com
Web site: www.adelaweb.com

Activities

• Provides information and advice to people with ALS/MND and their families
• Coordinates activities of volunteers providing support and raising funds
• Supports network of regional care advisors in advising families and professionals
• Serves as a link for nationwide equipment loan scheme providing communication aids, chairs, bed elevators, etc
• Provides home care support
• Forms public opinion (newspapers, TV, Internet)
• Raises awareness of the disease
• Conducts conferences and courses (people with ALS/MND and their families, and health professionals)
• Provides emotional support to specialists, including psychologists
• Maintains contact with 4000 people with ALS/MND

Fundacion Espanola para el Fomento de la Investigacion de la Esclerosis Lateral Amiotrofica (FUNDELA)

Teresa Salas Campos, Co-ordinator

Calle Sinesio Delgado, 10-28029 Madrid
Tel: + 34 91 453 2595
Fax: +34 91 733 6614
Email: fundela@fundela.info
Web site: www.fundela.info

Activities:

1. Total or partial projects and investigation financing
2. To propagate updated scientific and clinical knowledge of the illness by way of realisation and/or sponsorship of conferences, trainings, editing books and magazines and scholarships for investigation or study
3. Actions to make society aware and conscientious of the social-sanitary problems caused by this illness in order to procure donations from public and private institutions for investigation and for improving the quality of life of patients
4. Proactive and mutual collaboration with associates or other organizations with the same objectives as the Foundation in order to achieve them sooner

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