Switzerland*

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F

Full Member of the International Alliance

Association Suisse Romande et Italienne Contre les Myopathies (ASRIM)

Anne Humberset

18 Route du Vignoble - 1175 Lavigny, Switzerland
Tel: +41 21 808 74 11
Fax: +41 21 808 81 11
E-mail: info@asrim.ch
Website: www.asrim.ch

 

Region Covered:

French and Italian speaking parts of Switzerland

Date Founded:

1977

Branches/Chapters:

1

Activities

  • Patient information (literature, meetings, talks, conferences, bulletins, medical revues, newsletters, holiday camps.)
  • Research support through grants, equipment, by our foundation of neuromuscular diseases.
  • Financial help; neuromuscular consultation in university hospitals in Lausanne, Geneva, Lugano.
  • Research fundings by Telethon.
  • Financial support for following-up children with neuromuscular diseases to the university orthopedical hospital.
  • Financial support for developing auxiliary equipment Information on neuromuscular diseases to the public, medical and paramedical personal.
  • Activities with umbrella associations on national level to eliminate discrimination for handicapped people.

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F

Full Member of the International Alliance

Schweizerische Gesellschaft für Muskelkranke SGMK

Franzika Mattes

Kanzleistrasse 80, 8004 Zürich, Switzerland
Tel:  +41 1 245 80 30
Fax: +41 1 245 80 31
Email info@muskelkrank.ch
Website: www.muskelkrank.ch

 

Region Covered:

German speaking, Rhaeto-Romanic and Italian parts of Switzerland

Date Founded:

1974

Branches/Chapters:

0

Activities:

  • Raise awareness of neuromuscular disorders
  • Information on disease and related problems to patients, families, the public and specialists
  • Welfare assistance
  • The setup of neuromuscular centres in the covered region
  • Newsletter for members three times a year
  • Special information services for ALS/MND patients and families concerning care, rehabilitation, social insurances and all forms of help in daily life
  • Set up and support of self help groups, especially for people with ALS/MND
  • Organisation of summer and computer holiday camps for children and adults with neuromuscular diseases
  • Training for carers
  • Financial help in case of need

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