Taiwan Motor Neuron Disease Association

Full Member, Taiwan

Region covered:

Taiwan

Branches/chapters:

3

Date founded: Oct 1996

Contacts

  • Yen-Chu Liu, President
  • Professor Ching Piao Tsai, Alliance Delegate

Address:

Headquarters, Taipei:
7F-1, No. 2 Minzu E. Rd., Zhongshan District, Taipei 10461, Taiwan
Tel: +886 2 2585 1367
Fax: +886 2 2585 1302

Taichung Office:
1F., No. 13 Jiangong St., East Dist., Taichung City 40150, Taiwan
Tel: +886 4 2280 4832
Fax: +886 4 2280 4846

Kaohsiung Office:
15F, No.46, Yichang Rd., Sanmin Dist., Kaohsiung City 80780, Taiwan
Tel: +886 7 389 6930
Fax: +886 7 398 0380

Email:

mnda@mnda.org.tw

Website:

www.mnda.org.tw

Activities

Taiwan Motor Neuron Disease Association Activities

  • To promote the patient’s willingness to use hospice care, even those who do not choose to prolong their lives by using a ventilator in the advanced stage of the disease.
  • To cooperate with academic research projects for developing useful communication tools such as an eye-tracking device for ALS patients.
  • To stimulate volunteerism and organise a training course for volunteers who will be able to assist ALS patient families directly or through telephone consultation.
  • To increase the awareness of ALS disease in our society.
  • To publish a second edition of the ALS Handbook, which will include disease awareness, medical care psychological adjustments and social resources.
  • To distribute our bi-annual ALS magazine to members, ALS patients and their families.
  • To organise workshops and seminars focusing on general medical and caring skills for ALS patients and families.
  • To produce videotapes and other instructional materials on general medical care and guidance for ALS patients.
  • To expand the requirements for home care.