Taiwan*
F | Full Member of the International Alliance |
Taiwan Motor Neuron Disease Association
Dr Tsui-Leih Hsu, President
Professor Ching Piao Tsai, Alliance Delegate
Headquarter:
16F Chung-Chen Building, 201 Shih-Pai Road, Section 2, Pei-Tou District, Taipei, Taiwan 11217, Republic of China
Taipei office:
1F, 13 Shih-Chien St., Lane 56, Pei-Tou District, Taipei, Taiwan 11217, Republic of China
Tai-chung office:
5F, 18 Chung-Shang Road, Section 2, Lane 184, Tang-Tse Township, Taichung County, Taiwan, 427, Republic of China
Tel: +886 2 2820 1357
Fax: +886 2 2820 1431
E-mail: mnda2874@ms39.hinet.net
Web Site: www.mnda.org.tw
Region Covered: | Taiwan |
Date Founded: | Oct 1996 |
Branches/Chapters: | None |
Activities
- To promote the patient’s willingness to use hospice care, even those who do not choose to prolong their lives by using a ventilator in the advanced stage of the disease.
- To cooperate with academic research projects for developing useful communication tools such as an eye-tracking device for ALS patients.
- To stimulate volunteerism and organise a training course for volunteers who will be able to assist ALS patient families directly or through telephone consultation.
- To increase the awareness of ALS disease in our society.
- To publish a second edition of the ALS Handbook, which will include disease awareness, medical care psychological adjustments and social resources.
- To distribute our bi-annual ALS magazine to members, ALS patients and their families.
- To organise workshops and seminars focusing on general medical and caring skills for ALS patients and families.
- To produce videotapes and other instructional materials on general medical care and guidance for ALS patients.
- To expand the requirements for home care.