Union of Muscular Dystrophy Societies of Croatia

Full Member, Croatia

Region covered:

Croatia

Branches/chapters:

17

Date founded: 1970

Contacts

  • Marica Miric - President
  • Marija Sostarko - Medical Advisor

Address:

Nova Ves 44,
10000 Zagreb,
Croatia

Phone:

+385 1 466 6849, +385 1 461 6046

Fax:

+385 1 466 6849, +385 1 461 6045

Email:

marija.sostarko@zg.htnet.hr, sddh@zg.t-com.hr

Website:

www.sddh.hr

Activities

Union of Muscular Dystrophy Societies of Croatia Activities

  • Gathering together persons with neuromuscular diseases
  • Information for neuromuscular patients and their families about their disease
  • Performing social and humanitarian activities
  • Supporting permanent aid to neuromuscular patients suffering from respiratory disturbance or insufficiency
  • Protection of persons with neuromuscular diseases
  • Quarterly newsletter
  • Organising summer holidays, concerts, picnics or different kinds of celebration