Denmark*
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F |
Full Member of the International Alliance |
Muskelsvindfonden
Jetns Spanfelt, Alliance Representative
Kongsvang Allé 23, DK-8000 Aarhus C, Denmark
Tel: International +45 89 48 22 22
Fax: International +45 89 48 22 12
E-Mail: reception@muskelsvindfonden.dk
E-Mail: jesp@muskelsvindfonden.dk
Web: http://www.muskelsvindfonden.dk
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Region Covered: |
Denmark. |
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Date Founded: |
1971 |
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Branches/Chapters: |
2 |
Activities
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Arranging and supporting national and international meetings for people with ALS and their spouses
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Arranging courses for people with ALS, their families and helpers
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Devising and promoting standards of respiratory and practical care
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Setting up support groups
Founded Rehabilitation Centre for Neuromuscular Diseases witch offers the following activities for the Danish population with ALS:
ALS-consultants providing following tasks:
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Ensure that families with ALS receive the best possible care
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Offer advice and information for health and social care professionals and people affected by ALS/MND
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Produce leaflets and publications about the disease and good practice in relation to ALS
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Arrange home visits and information meetings with local authorities
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Arrange courses and theme meetings for persons with ALS and their families
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Coordinate support and treatment of ALS patients with the ALS team in hospitals
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Carry out research and developmental work in relation to rehabilitation of ALS/MND patients