2017 ALS/MND Meetings in Boston

Thanks to everyone who joined us for the 25th Annual Alliance Meeting, 15th Annual Allied Professionals Forum and 28th Annual Symposium on ALS/MND. This year’s meetings were held in Boston, MA, USA at the Westin Boston Waterfront, and the events were co-hosted by two Alliance members: ALS Therapy Development Institute and the ALS Hope Foundation. Here’s a wrap up of the meetings, with links to more detailed information.

For more, check out the Alliance’s social media posts from the meetings (FacebookTwitter) and follow the hashtags #alssymp and #alsmndwithoutborders!

25th Annual Alliance Meeting, 5-6 December

We set a record at the 2017 Alliance Meeting, with more than 120 attendees representing over 25 countries! This year, we celebrated our 25th birthday, and we hope you caught this great video that Alliance members made to celebrate:

During the Alliance Meeting, more than 20 presenters spoke about programming for people with ALS/MND and their carers, research and technology, strategic planning, governance and more. The Alliance Meeting also featured a scientific presentation from Dr. Jonathan Glass.

You can read through the 2017 Alliance Meeting agenda and watch video from all of our presenters on the 2017 meetings page. You can also watch video of the afternoon’s Ask The Experts session on the Alliance’s Facebook page. 

Alliance Group Photo, Boston, 2017

15th Annual Allied Professionals Forum, 7 December

We were proud to host more than 250 allied health professionals for this year’s APF in Boston. During the APF, 16 speakers gave presentations on assistive technology, developing resources for families and carers, models of care, managing cognitive change and more.

Special thanks to Stephen Winthrop, who gave a beautiful opening address and reminded us that PALS are at the centre of our work.

You can read through the 2017 APF agenda and watch video recordings of every presentation on the 2017 meetings page.

28th Annual Symposium on ALS/MND, 8-10 December

Here are some resources from the 2017 Symposium, organised by our colleagues at the Motor Neurone Disease Association.

Symposium abstracts are available online.

With presenter permission, many posters and slides from the Symposium are also available online.

We also recommend that you read the MND Research Blog’s summary of the Clinical Trials Session, including information on on masitinib, tirasemtiv, rasagiline, ibudilast, edaravone and lithium carbonate in ALS/MND.

Thank You

We’d like to say thanks…

Thank you to the dedicated AV team at ASETS and the brilliant Conference Team at the MND Association for making these meetings possible.

Thank you to our generous co-hosts, ALS Therapy Development Institute and the ALS Hope Foundation.

Thank you to The ALS Association Massachusetts Chapter and Compassionate Care ALS for helping to provide equipment and services for people living with ALS/MND who visited Boston during the meetings. Thanks also to MT Pharma America for sponsoring van rides for people with ALS/MND.

Finally, a huge debt of gratitude to our Platinum Sponsor, Cytokinetics! Without their support, the Alliance Meeting and APF would not have been possible.