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International Alliance of ALS/MND Associations

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Budget and Finance Committee

The role of the International Alliance of ALS/MND Associations’ Budget and Finance Committee is responsible for reviewing the integrity of the organisation’s financial reporting and overseeing the independence of the external auditors.

Chair: David Ali, MND Australia

David Ali

David says it is a real privilege to be elected to the Board of the International Alliance. He brings 25 years’ experience as an executive and non-executive Director on government and not-for-profit boards. Apart from MND, he is currently Treasurer of Communities That Care Australia. In his day job, he is the CEO of a not-for-profit membership-based professional peak association so he understands the importance of member-based organisations like the International Alliance. His professional background is in social policy (health, human services, justice) and corporate services. In his spare time David’s focus is on his family, keeping fit (ex long distance runner, now walker) and learning a new language.

David is passionate about helping to make a difference for people living with MND/ALS. For 18 years, he has volunteered his time and skills to the governance of two MND organisations in Australia, supported research, hosted and attended many events supporting MND/ALS, and participated at eight International Alliance meetings. David has been a Director of MND Australia since 2006 and was elected National President in November 2013. He has continued as a Director of MND Victoria since 2000 and was its State President from 2006 to 2013.

Committee Members

Gorrit-Jan Blonk, ALS Netherlands

I have been the CEO of ALS Netherlands for more than 4.5 years and a member of the Board of Directors of the International Alliance of ALS/MND Associations since December 2015. As an Alliance delegate and a Board member, I joined the worldwide fight against ALS/MND because I strongly believe in international collaboration in all the things we do. By working together, we will defeat ALS/MND faster than only working nationally. Sharing ideas and working together in the Alliance is key. That is why I am proud to serve as a Board member.

Nick Goldup, MND Association of England

Nick joined the MND Association of England, Wales and Northern Ireland as Director of Care Improvement in August 2017 and joined the Board of the International Alliance in December 2018. Prior to this he spent 6 years as Director of Partnerships at the children’s charity Whizz-Kidz working alongside senior health commissioners and stakeholders to implement improvements to care and streamline procurement activities. Nick is a member of the UK National Wheelchair Alliance aiming to improve provision of wheelchairs for people living with MND and has worked as a Non-Exec Director of a wound and Lymphedema service for 5 years. Nick has also served as a national advisor for a selection of UK National Health Service and Department of Health improvement programmes.

Prior to his roles in the charity sector, Nick enjoyed a successful corporate career working in a variety of blue chip procurement roles over a 15 year period, including Tesco, AMEC, Mitsubishi Electric Europe and for three years as a buyer based in Jakarta, Indonesia.

During his spare time Nick is a keen cyclist and runner having run the London Marathon twice, completed 7 triathlons and numerous cycling events including Land’s End to John O’Groats, 5 UK capitals in 12 days and London to Paris all of which combined raised £½ million for charity.

Nick says ‘ I am honoured to represent the MND Association as a member of the International Alliance and look forward to working with my International colleagues to support and improve outcomes for people living with MND/ALS’.

Andrea Pauls Backman, Les Turner ALS Foundation, USA

Andrea has been Chief Executive Officer of the Les Turner ALS Foundation since 2015. She brings both a professional and personal passion to ALS/MND having cared for and lost her mother, Sally, to the disease in 2010.

Andrea came to the ALS field following a 30 year career in business management as an institutional investment manager, including as a Managing Director at several investment firms. She also brings more than 15 years of nonprofit board management experience. She is honored to serve on the Board of Directors of the International Alliance of ALS/MND Associations.

Andrea holds a Master of Business Administration from DePaul University and a Bachelor of Business Administration from Loyola University of Chicago and is a certified public accountant. She also received a Professional Development Certificate in Philanthropy and Nonprofit Organizations from the Northwestern School of Professional Studies. Outside of the office, Andrea enjoys spending time with with her family, cooking and biking.

“I am in the ALS/MND fight because I’ve never seen more courageous, determined and selfless individuals than those with this disease. I am committed to do all I can to make their lives better and help find the key to the cure.”

Craig Stockton, MND Scotland

Craig Stockton

Craig has been involved with ALS/MND since joining MND Scotland in 2000 as Chief Executive. Prior to this he had worked within Local Government as a manager within the education department and as a senior manager with the charity Royal National Institute for the Blind (RNIB), running Scotland’s only residential training and rehabilitation centre for blind and visually impaired adults. He is a past director of the Scottish Partnership for Palliative Care and is a founding member and immediate past chairman of the Neurological Alliance of Scotland, where he still sits on the executive board. He was part of the group that produced the General Medical Council’s (GMC) guidance for doctors on ‘Treatment and Care towards the end of Life’ and had considerable involvement in the development and review of the Neurological Health Service Standards for Scotland. In his spare time, he enjoys playing veterans rugby and is an active first aider (the two activities are not necessarily related!).

Primary Sidebar

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • Ailsa Malcolm-Hutton, Diagnosed 2013 - MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013 – MND Association of England, Wales and N Ireland

  • Sally Pauls, Diagnosed 2006 - Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 – Les Turner ALS Foundation

  • Monica Soriano, Diagnosed 2011 - Asociación ELA Argentina

    Monica Soriano, Diagnosed 2011 – Asociación ELA Argentina

  • Mike Rannie, ALS Canada, Diagnosed 2017, Canada

    Mike Rannie, ALS Canada, Diagnosed 2017, Canada

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Karl Hughes, Diagnosed 2010 - IMNDA, Ireland

    Karl Hughes, Diagnosed 2010 – IMNDA, Ireland

  • David Watson, MND Scotland, Diagnosed 2018, Scotland

    David Watson, MND Scotland, Diagnosed 2018, Scotland

  • Len Johnrose, MND Association, Diagnosed 2017, England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

  • Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Francisco Perez Palop, Diagnosed 2013 - FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 – FUNDELA, Spain

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Ian Roberts

    Ian Roberts

  • Carlos Gomez Matallanas, Diagnosed 2014 - FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 – FUNDELA, Spain

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

  • Alejandro Aquino, Diagnosed 2011 - Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 – Asociación ELA Argentina

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • Susan Anderson, Diagnosed 2014 - Hope Loves Company, USA

    Susan Anderson, Diagnosed 2014 – Hope Loves Company, USA

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

    Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

  • Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Margreth Burger-Saile, Diagnosed 2011 - ALS Schweiz, Switzerland

    Margreth Burger-Saile, Diagnosed 2011 – ALS Schweiz, Switzerland

  • Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Wilfried Leusing, Diagnosed 2010 - DGM, Germany

    Wilfried Leusing, Diagnosed 2010 – DGM, Germany

  • Marcel R. Wernard, Diagnosed 2016 - ALS Patients Connected, The Netherlands

    Marcel R. Wernard, Diagnosed 2016 – ALS Patients Connected, The Netherlands

  • Zelina-Brito-Diagnosed-2018-Brazil

    Zelina-Brito-Diagnosed-2018-Brazil

  • Lachlan Terry, MND Australia, Diagnosed 2015, Australia

    Lachlan Terry, MND Australia, Diagnosed 2015, Australia

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • Conny van der Meijden, Diagnosed 2001 - ALS Netherlands

    Conny van der Meijden, Diagnosed 2001 – ALS Netherlands

  • Eddy LeFrançois, Diagnosed 1992 - ALS Canada

    Eddy LeFrançois, Diagnosed 1992 – ALS Canada

  • Duncan Bayly - MND Australia

    Duncan Bayly – MND Australia

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Chris McCauley, Diagnosed 2015 - ALS Canada

    Chris McCauley, Diagnosed 2015 – ALS Canada

  • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Osiel Mendoza, Diagnosed 2016 - ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 – ALS Therapy Development Institute, USA

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Danny Reviers, Diagnosed 1979 - ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 – ALS Liga België, Belgium

  • Joanne Pratt, Diagnosed 2011 - MND Australia

    Joanne Pratt, Diagnosed 2011 – MND Australia

  • Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

    Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

  • Joy Blakeley, Diagnosed 2017 - MND Australia

    Joy Blakeley, Diagnosed 2017 – MND Australia

Learn more about the March of Faces

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Allied Professionals Forum Registration

The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones on 3 – 4 December 2020.

Click here to register for the Allied Professionals Forum

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