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International Alliance of ALS/MND Associations

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Board Committees

Committee TitleCommittee MembersCommittee Responsibilities
Budget and Finance CommitteeDavid Ali (Chair),
Gorrit-Jan
Blonk, Evy
Reviers, Nick
Goldup, Craig
Stockton
The Committee is responsible for reviewing the integrity of the organisation’s financial reporting and overseeing the independence of the external auditors.

The Committee has the following duties:
• Approve the draft annual budget for presentation to the Board for final approval.
• Ensure the budget is aligned with the Alliance’s Strategic Plan and priorities.
• Approve adjustments to the annual budget as necessary.
• Monitor the financial performance of the organisation, to take action on any significant financial management matters generally and to advise the Board on any significant financial management matters.
• Monitor the management of administration and staff resources, respecting the Executive Director’s delegated responsibilities to manage the organisation including its resources.
• Ensure that Executive Director delegations are in place and reviewed when required and adjusted.
• Monitor internal controls and ensure compliance with various laws and standards as relevant.
• Monitor management of organisational risk, conduct annual risk management reviews, to take action on any significant risk issue, and to advise the Board of any significant risk issues.
• Monitor the financial investments of the organisation, to take action on any significant investment matter generally, and to advise the Board of any significant investment management matters.
• Consider any issues arising from interim and final audits, and any matters the auditors may wish to discuss.
• Each year, review the appointment of the external auditor, their independence, the audit fee, and to recommend to the Board and at the Annual General Meeting the appointment or reappointment of the external auditor.
Governance CommitteeCraig Stockton (Chair), David Ali, Nick GoldupThe committee will review and report to the Board on items and areas within it’s remit, including the following:
• Reviewing the Governing Document.
• Developing and reviewing governance policies and procedures;
• Ensuring that an organisational strategic plan is developed, followed and monitored.
• Ensuring that a governance framework is developed and implemented to confirm robust governance, reporting compliance and providing trustee assurance
• Ensuring that systems are in place to regularly review the performance of the board as a whole and evaluate the contribution of individual members.
• Ensuring that risks to the organisation are identified, regularly reviewed and appropriate control measures put in place.
• Developing and monitoring procedures to ensure the organisation's legal and regulatory compliance
• Ensure that there are effective induction and mentoring processes for board members
• Establishing a board reporting cycle and annual board diary.

Task Forces and Working Groups will be struck each year or as needed for various outcomes including Award Nominations, Programs, and Strategic Planning.

Primary Sidebar

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Brian Lovell, Diagnosed 2011 - MND Australia

    Brian Lovell, Diagnosed 2011 – MND Australia

  • Monica Soriano, Diagnosed 2011 - Asociación ELA Argentina

    Monica Soriano, Diagnosed 2011 – Asociación ELA Argentina

  • Karl Hughes, Diagnosed 2010 - IMNDA, Ireland

    Karl Hughes, Diagnosed 2010 – IMNDA, Ireland

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Wilfried Leusing, Diagnosed 2010 - DGM, Germany

    Wilfried Leusing, Diagnosed 2010 – DGM, Germany

  • Marcel R. Wernard, Diagnosed 2016 - ALS Patients Connected, The Netherlands

    Marcel R. Wernard, Diagnosed 2016 – ALS Patients Connected, The Netherlands

  • Margreth Burger-Saile, Diagnosed 2011 - ALS Schweiz, Switzerland

    Margreth Burger-Saile, Diagnosed 2011 – ALS Schweiz, Switzerland

  • Conny van der Meijden, Diagnosed 2001 - ALS Netherlands

    Conny van der Meijden, Diagnosed 2001 – ALS Netherlands

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Charlie “Hark” Dourney, Diagnosed 2007 - Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 – Hark ALS, USA

  • Josée Kolijn-de Man, Diagnosed 2015 - ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 – ALS Patients Connected, The Netherlands

  • Duncan Bayly - MND Australia

    Duncan Bayly – MND Australia

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

  • Susan Anderson, Diagnosed 2014 - Hope Loves Company, USA

    Susan Anderson, Diagnosed 2014 – Hope Loves Company, USA

  • Joanne Pratt, Diagnosed 2011 - MND Australia

    Joanne Pratt, Diagnosed 2011 – MND Australia

  • Ailsa Malcolm-Hutton, Diagnosed 2013 - MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013 – MND Association of England, Wales and N Ireland

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Osiel Mendoza, Diagnosed 2016 - ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 – ALS Therapy Development Institute, USA

  • Roxana Canova, Diagnosed 2012 - Asociación ELA Argentina

    Roxana Canova, Diagnosed 2012 – Asociación ELA Argentina

  • Erwin Coppejans, Diagnosed 2007 - ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 – ALS Liga België, Belgium

  • Carlos Gomez Matallanas, Diagnosed 2014 - FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 – FUNDELA, Spain

  • Chris McCauley, Diagnosed 2015 - ALS Canada

    Chris McCauley, Diagnosed 2015 – ALS Canada

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Danny Reviers, Diagnosed 1979 - ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 – ALS Liga België, Belgium

  • Joy Blakeley, Diagnosed 2017 - MND Australia

    Joy Blakeley, Diagnosed 2017 – MND Australia

  • Ian Roberts

    Ian Roberts

  • Francisco Perez Palop, Diagnosed 2013 - FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 – FUNDELA, Spain

  • Eddy LeFrançois, Diagnosed 1992 - ALS Canada

    Eddy LeFrançois, Diagnosed 1992 – ALS Canada

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Alejandro Aquino, Diagnosed 2011 - Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 – Asociación ELA Argentina

  • Angie Bordaen, Diagnosed 2014 - ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014 – ALS Liga België, Belgium

  • Sally Pauls, Diagnosed 2006 - Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 – Les Turner ALS Foundation

Learn more about the March of Faces

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