The role of the Innovation and Technology Council (ITAC) is to make recommendations regarding technology and innovation strategies in line with the Alliance’s strategic goals and principles which will benefit those living and affected by ALS/MND globally.
Nick Goldup, Chair
MND Association, UK
Nick joined the MND Association of England, Wales and Northern Ireland as Director of Care Improvement in August 2017 and joined the Board of the International Alliance in December 2018. Prior to this he spent 6 years as Director of Partnerships at the children’s charity Whizz-Kidz working alongside senior health commissioners and stakeholders to implement improvements to care and streamline procurement activities. Nick is a member of the UK National Wheelchair Alliance aiming to improve provision of wheelchairs for people living with MND and has worked as a Non-Exec Director of a wound and Lymphedema service for 5 years. Nick has also served as a national advisor for a selection of UK National Health Service and Department of Health improvement programmes.
Prior to his roles in the charity sector, Nick enjoyed a successful corporate career working in a variety of blue chip procurement roles over a 15 year period, including Tesco, AMEC, Mitsubishi Electric Europe and for three years as a buyer based in Jakarta, Indonesia.
During his spare time Nick is a keen cyclist and runner having run the London Marathon twice, completed 7 triathlons and numerous cycling events including Land’s End to John O’Groats, 5 UK capitals in 12 days and London to Paris all of which combined raised £½ million for charity.
Nick says ‘ I am honoured to represent the MND Association as a member of the International Alliance and look forward to working with my International colleagues to support and improve outcomes for people living with MND/ALS’.
ALS Hope Foundation, USA
Sara Feldman, PT, DPT, ATP is the Clinical Liaison for the ALS Hope Foundation in Philadelphia, PA, USA. Dr. Feldman is the Physical Therapist and Assistive Technology Professional at the MDA/ALS Center of Hope, where she has been serving people with ALS/MND for more than 20 years. In addition to clinical care, she is involved in clinical trials, education and the use of assistive technology. She is Co-Chair of the Northeast ALS Consortium (NEALS) Physical Therapy Committee and is the Clinical Evaluator Representative on the NEALS Executive Committee. She has been an active delegate to the Alliance since 2007 and has participated in three partnerships, with ABrELA, Iceland MND Association and IsrALS. She is committed to ensuring the Partnership Programme continues to expand and grow. In 2015, Sara assumed the role of the Co-Chair of the Allied Professionals Forum. Sara brings a clinician’s perspective and experience to the Alliance Board and until there is a cure, will continue to work towards improving care..
Tammy Moore is the CEO of the ALS Society of Canada. ALS Canada is responsible for Canada’s national ALS research program, federal advocacy and serving over 1,000 people living with ALS in the province of Ontario.
Tammy made this transition from the private sector, where she founded and led a communications and marketing agency. Later she worked with a private equity group in C-suite roles during acquisition and restructuring and through a business management consulting practice.
Tammy has served in senior leadership roles on International, National and local Boards and Steering Committees in not for profit, health, community, tech and entrepreneurship sectors. Outside of the office, Tammy has been a competitive sailor for almost 10 years at a national level and has crewed on a team that won the Canadian Women’s National Keelboat Championships.
Rolls-Royce Global IT Innovation Strategist, UK
Stuart has worked for Rolls-Royce for over 22 years and has extensive experience across a variety of fields. His knowledge extends from sales to creative design and technology strategy. Previously responsible for Future Technology Strategy he has worked on a variety of cutting-edge innovations and patents. In 2019 Stuart collaborated with the UK MND Association and multiple IT companies to create the NextGen Think Tank, a group aimed at helping people with MND. Passionate about innovation, Stuart believes that given the right stimulation anyone can innovate. His favourite quote is “Intelligence is the ability to adapt to change” by Stephen Hawking.