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International Alliance of ALS/MND Associations

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Annual Member Subscriptions

Annual Subscriptions for Members: Information

1. It is a requirement that membership subscriptions for associations are accompanied by the member’s most recent year-end financial statements; please upload your financial statement using the form below, or send a copy to the Alliance Coordinator by email (coordinator@als-mnd.org). We need to ensure that this is standard practice.

2. Subscriptions are distributed annually on 1 July and due before 1 September.

3. Full Members: Subscriptions are 0.20% of the member’s total (gross) annual income or £100 (pounds sterling), whichever is the greater. The maximum payment is £10,000. Associates: Subscriptions are £100 (pounds sterling).

4. Payment must be made in pounds sterling and credit card is the preferred method of payment.

5. If paying by bank draft/bank transfer, the bank’s commission charges should be added to your payment being made, not taken from it.

6. APPLICATION TO WAIVE FEES

Year 1: Applications to have fees waived must be accompanied by the members latest end of year financial statements. If the Association sends a delegate to the Alliance meetings, that delegate will not be allowed to vote or hold office until membership dues are paid in full for the current membership year.

Year 2: Most recent end of year financial statements must again accompany applications, but there will be a requirement that the member Association contributes 50% of the fee. If the Association sends a delegate to the Alliance meeting, that delegate will not be allowed to vote or hold office until membership dues are paid in full for the current membership year.

Year 3: If a Member is unable to pay subscription for a third year running, the Alliance will review membership to ensure that the level of service to people with ALS/MND fulfills the requirements of membership of the Alliance. If those requirements are not being met, that member may be asked to withdraw membership.

To pay your subscription fee, please use the electronic form below. If you experience any difficulties, you can also send information requested below to coordinator@als-mnd.org.

Any information entered on this electronic form is safe and confidential. It will be viewable only by Alliance staff members, and is of the same security level as emailing your information through the paper form.

For any questions, or if you require any assistance, please contact the Alliance Coordinator by e-mail: coordinator@als-mnd.org.

Membership Subscription Form

  • For inquiries arising from this form.
  • Membership Level * Required
  • Delegate 1 Name * Required
    Enter the name of the delegate who will vote at the AGM.
  • Delegate 2 Name * Required
    Enter the name of an Alternate delegate in the event Delegate 1 is unable to vote.
  • Please note that, for associations, an official financial statement must be uploaded below or submitted to the Executive Director at cathy.cummings@als-mnd.org. Individuals may leave this field blank.
  • Maximum file size - 32 mega bytes.
  • Do you wish to apply for a fee waiver on the basis of financial need? * Required
    If your organisation needs to apply for a waiver, please contact cathy.cummings@als-mnd.org and submit your financial documents as proof of need.
  • Full Member fee = 0.20% of gross annual income or £100; whichever is greater; Associate fee = £100
  • Method of Payment * Required
    To pay by credit card, fill in your information below.

    To pay by bank transfer, please leave the credit card information fields blank and make a transfer payable to:

    The International Alliance of ALS/MND Associations
    Lloyds TSB Bank PLC
    George Row
    Northampton UK
    Account No: 2952563
    Sort code: 30-96-09
    BIC: LOYDGB21071 IBAN: GB13 LOYD 3096 0902 9525 63
  • Date Format: MM slash DD slash YYYY
  • Credit Card Type (if using)
  • Credit Card Billing Address (if using)
  • This field is for validation purposes and should be left unchanged.

Primary Sidebar

  • Marcel R. Wernard, Diagnosed 2016 - ALS Patients Connected, The Netherlands

    Marcel R. Wernard, Diagnosed 2016 – ALS Patients Connected, The Netherlands

  • Ian Roberts

    Ian Roberts

  • David Watson, MND Scotland, Diagnosed 2018, Scotland

    David Watson, MND Scotland, Diagnosed 2018, Scotland

  • Osiel Mendoza, Diagnosed 2016 - ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 – ALS Therapy Development Institute, USA

  • Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

    Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

  • Eddy LeFrançois, Diagnosed 1992 - ALS Canada

    Eddy LeFrançois, Diagnosed 1992 – ALS Canada

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Zelina-Brito-Diagnosed-2018-Brazil

    Zelina-Brito-Diagnosed-2018-Brazil

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Lachlan Terry, MND Australia, Diagnosed 2015, Australia

    Lachlan Terry, MND Australia, Diagnosed 2015, Australia

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

  • Ailsa Malcolm-Hutton, Diagnosed 2013 - MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013 – MND Association of England, Wales and N Ireland

  • Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Conny van der Meijden, Diagnosed 2001 - ALS Netherlands

    Conny van der Meijden, Diagnosed 2001 – ALS Netherlands

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Josée Kolijn-de Man, Diagnosed 2015 - ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 – ALS Patients Connected, The Netherlands

  • Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

  • Roxana Canova, Diagnosed 2012 - Asociación ELA Argentina

    Roxana Canova, Diagnosed 2012 – Asociación ELA Argentina

  • Danny Reviers, Diagnosed 1979 - ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 – ALS Liga België, Belgium

  • Susan Anderson, Diagnosed 2014 - Hope Loves Company, USA

    Susan Anderson, Diagnosed 2014 – Hope Loves Company, USA

  • Erwin Coppejans, Diagnosed 2007 - ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 – ALS Liga België, Belgium

  • Angie Bordaen, Diagnosed 2014 - ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014 – ALS Liga België, Belgium

  • Francisco Perez Palop, Diagnosed 2013 - FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 – FUNDELA, Spain

  • Joanne Pratt, Diagnosed 2011 - MND Australia

    Joanne Pratt, Diagnosed 2011 – MND Australia

  • Alejandro Aquino, Diagnosed 2011 - Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 – Asociación ELA Argentina

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • Duncan Bayly - MND Australia

    Duncan Bayly – MND Australia

  • Karl Hughes, Diagnosed 2010 - IMNDA, Ireland

    Karl Hughes, Diagnosed 2010 – IMNDA, Ireland

  • Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

  • Philip Brindle, MND Association, Diagnosed 2015, England

    Philip Brindle, MND Association, Diagnosed 2015, England

  • Len Johnrose, MND Association, Diagnosed 2017, England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

  • Monica Soriano, Diagnosed 2011 - Asociación ELA Argentina

    Monica Soriano, Diagnosed 2011 – Asociación ELA Argentina

  • Mike Rannie, ALS Canada, Diagnosed 2017, Canada

    Mike Rannie, ALS Canada, Diagnosed 2017, Canada

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

    Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Brian Lovell, Diagnosed 2011 - MND Australia

    Brian Lovell, Diagnosed 2011 – MND Australia

  • Joy Blakeley, Diagnosed 2017 - MND Australia

    Joy Blakeley, Diagnosed 2017 – MND Australia

  • Charlie “Hark” Dourney, Diagnosed 2007 - Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 – Hark ALS, USA

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

Learn more about the March of Faces

Allied Professionals Forum Registration

The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones on 3 – 4 December 2020.

Click here to register for the Allied Professionals Forum

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  • Excited to learn that @biogen has completed enrollment of the VALOR trial for SOD1 ALS. #ALSMNDWithoutBorders January 4, 2021 6:08 pm

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