Heads Up! 2016 Allied Professionals Forum

MNDA Symp Logo

6 December 2016
Convention Centre Dublin
Dublin, Ireland



The International Alliance of ALS/MND Associations will host a one-day Allied Professionals Forum at the CCD in Dublin, Ireland on 6 December 2016. This seminar, specifically for allied health and social care professionals, is held between the International Alliance Meeting (4-5 December) and the International Symposium on ALS/MND (7-9 December).


The rapid and relentless progression of ALS/MND poses many challenges for people who live with this disease, as well as their carers and health and social care providers. The Allied Professionals Forum is an opportunity for health professionals to share their experiences, knowledge and strategies of caring for people with ALS/MND with their international peers.

The aim of this program is to promote the exchange of information on good practice and to enable health and social care professionals from all parts of the world to provide the highest quality care possible for people with ALS/MND through education and open dialogue.

Presenters discuss the hands-on work we all do in supporting people who live with ALS/MND. They review and discuss professional strategies and practices and report on their impact. Practice generates huge amounts of evidence supporting good initiatives that can be applied by others. This is the kind of practice-based evidence we would like you to share!

Make a difference to people with ALS/MND and those that care for them by sharing your knowledge and experience!


The Call for Abstracts will be distributed on 1 April 2016.
The deadline to receive abstracts will be 6 May 2016.


Abstracts will only be accepted on the official abstract submission form, which can be found here: ABSTRACT FORM (Please do not submit before 1 April)

We invite you to submit a presentation abstract that addresses one of our key themes for 2016. Our key themes will be:

  • Models of Support for Staff/Carers/PALS/MND
  • Assistive Technology: Communication Devices, Equipment and Other Innovations
  • Best Practice in the Care and Management of PALS/MND: Putting Evidence-Based Models Into Practice
  • Changing Practice: Novel Approaches to Improve QOL for PALS/MND and Carers
  • Advances in Managing FTD for Staff/Carers
  • Promoting a Palliative Approach: Planning Ahead and End-of-Life Care



Steven Bell (Co-Chair)
Director of Regional Care (North), MND Association of England, Wales and Northern Ireland
Sara Feldman (Co-Chair)
Clinical Liaison, ALS Hope Foundation, USA
Carol Birks
Chairwoman, International Alliance of ALS/MND Associations; Executive Director, MND Australia
Aisling Farrell
Chief Executive Officer, Irish Motor Neurone Disease Association
Robert A. Goldstein
Vice-President of Marketing, Communications & Development, ALS Therapy Development Institute
Rachel Patterson
General Manager, International Alliance of ALS/MND Associations