People like you diagnosed with ALS play the most important role in the discovery and development of effective treatments and cures. Your participation in a clinical trial provides researchers with the data they need to determine whether or not a potential treatment ought to move closer to being available to all those with ALS. The ALS Therapy Development Institute is unbiased in listing clinical trials, providing information on all those enrolling worldwide. We encourage you to browse trials below and to subscribe to the clinical trial mailing list which will email you once a month with an update on changes to trials listed in this database.
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ALS TDI Webinars
Each month, ALS TDI brings together researchers from our lab and others for a conversation about an important topic to patients today. These can be on a specific trial, an emerging technology, or a broad theory gaining notoriety in the effort to combat ALS. These conversations are designed to ask these researchers direct questions and to provide a place where YOU and YOUR family can speak directly to those working on your behalf at ALS TDI and other labs. These webinars are recorded, but we encourage folks to join us live as your questions and interaction with these researchers is incredibly important.
ALS Forum
Welcome to the ALS Forum. We were started in 2000 by the ALS Therapy Development Foundation (now Institute), which continues to moderate with the help of long-time forum members. The purpose of this forum is to exchange information about ALS, scientific advances in ALS, and treatments for ALS. Forum members include people living with ALS today as well as their care providers, family members, friends, neurologists as well as neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions. However, bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be removed and may lead to termination of forum privileges. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.
What is ALS?
Every 90 minutes someone is diagnosed with amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disorder. Each case is different, and the community of people with ALS and the care providers involved with ALS TDI share their experiences to help those newly diagnosed and their families. Advancements in ALS research have provided significant new insights into ALS, how to stratify those diagnosed, and develop effective treatments and cures…
MND Care
Welcome to MNDcare – the MND Australia evidence based and best practice website for health, disability, aged and community care professionals – getting motor neurone disease care research into practice.