Annual Alliance Meeting 2018 – Presentations

After another hugely successful and highly informative Annual Alliance Meeting in Glasgow, many of you requested that we share the Presentations that took place.

This will enable members that were unable to attend the event access to all of the Presentations, listen to them again at your leisure and also perhaps translate them into your own language to share with your Associations.

Below is the list of all the Presentations, just click on them to view:

Presentations on Advocacy:

1. Introducing An Advocacy Service – Roslyn Scholarios MND Scotland
2. 10 Years of NDIS Influencing – Carol Birks MND Australia 
3. The United States National ALS Register – Paul Mehta 
4. ALS Centers – Christine Tabuenca – ARSLA
5. Influencing and Voluntary Assisted Dying – Rod Harris MND Victoria – Notes 
6. From Side of Desk to Front of Mind – Tammy Moore ALS Canada

Presentations on Programming for PALS/CALS:

1. Craig Stockton – Creating Educational Videos
2. Online Support – Efrat Carmi – Israel Association 
3. Challenges in India for Caregivers of Patients – Ajay Gupta Asha Ek Hope Foundation of MND/ALS
4. Project Revoice – Brian Frederick
5. The Diversified services and awareness campaigns of ALS Liga Belgium – Lisa Castro
6. Introduction of communication support activities in Japan – Katsushi Tamaki

Presentations on Organisational Development:

1. Nina Levitskaya Russian Charity, Advances after the 10th Anniversary – Gleb Levisky
2. A cause for all – Adriana Oda

Presentations on Partnerships:

1. Together we’re Strong! – The Dutch approach – Theo Meister
2. Project ‘ANDAR’ – Pablo Aquino/Dario Ryba

Presentations on Stakeholder Engagement:

1. Improving MND Care Survey – Nick Goldup

Presentations on Looking to the Future:

1. Blink to Speak – Geet Rathi

Scientific Update Presentation: Dr David Taylor – Watch here