Awards

Every year, the International Alliance of ALS/MND Associations presents two awards to recognise excellence in the ALS/MND community. The awards are described below, along with a list of previous winners and the nomination forms.

The Forbes Norris Award

The Forbes Norris Award, first presented in 1994, honours the memory of Dr. Forbes “Ted” Norris (1928-1993), a neurologist who dedicated his career to helping people with ALS/MND. The purpose of this prestigious Award is to encourage a combination of two major qualities: management of and advances in understanding ALS/MND, to the benefit of people living with the disease.

The recipient of the 2017 Forbes Norris Award is Dr. Merit CudkowiczDr. Cudkowicz, or Merit as she prefers to be called by her team and by her patients, began her passion in researching and caring for people with ALS/MND in 1994. Rising through the ranks in academia, she never lost sight of her goal: to find the answer, find the cure. She continued under Dr. Robert H. Brown, her mentor at Massachusetts General Hospital, eventually becoming the Co-Director of the Neurology Clinical Trials Unit in 1997. This allowed Merit to share her passion and mentor young investigators in clinical trials in ALS/MND while simultaneously continuing to remain active clinically.  Through combined efforts, she co-founded the Northeast ALS Consortium (NEALS) in 1997, an organization which has since grown into an international conference for leaders in both research and clinical care in ALS/MND. This collaboration allowed her to be a leader in defining care and management of ALS/MND, as well as cutting edge research. Today, Merit is the Chief of Neurology at Massachusetts General Hospital, and whilst others in her position might forego a substantial amount of their previous commitments, Merit does not. She continues to see patients clinically, and she is a strong leader in ALS/MND research and an even stronger patient advocate.

Nominations for the Forbes Norris Award are considered from 1 May through 1 October annually; the awards are presented each year during the opening ceremony of the International Symposium on ALS/MND.

Click here to access the Forbes Norris Award Nomination Form
(The 2017 deadline has elapsed. You may submit a nomination starting 1 May 2018.)

Previous Winners

1994 Professor Vincent Meininger

1995 Dr. Teepu Siddique

1996 Dr. Donald Mulder

1997 Professor Nigel Leigh

1998 Dr. Hiroshi Mitsumoto

1999 Dr. Andrew Eisen

2000 Professor Michael Swash

2001 Dr. Lewis P. (Bud) Rowland

2002 Professor Vianney DeJong

2003 Dr. Robert H. Brown

2004 Dr. Robert G. Miller

2005 Dr. Stanley Appel

2006 Dr. Walter G. Bradley

2007 Dame Professor Pamela Shaw

2008 Dr. Michael Strong

2009 Professor Christopher Shaw

2010 Dr. Edward Kasarskis

2011 Professor Orla Hardiman

2012 Dr. Benjamin Brooks

2013 Dr. Leonard van den Berg

2014 Dr. Matthew Kiernan

2015 Dr. Terry Heiman-Patterson

2016 Dr. Mamede de Carvalho

 

The Humanitarian Award

The Humanitarian Award was inaugurated in 2000 by the International Alliance of ALS/MND Associations to recognise a non-scientific contribution to the fight against ALS/MND. The Humanitarian Award is intended to recognise and encourage individuals and/or groups whose work makes, or has made, a contribution of international significance for people affected by ALS/MND.

The recipients of the 2017 Humanitarian Award are Peter Frates, Patrick Quinn and Anthony Senerchia, Jr., the founders of the Ice Bucket Challenge. This single event, started by three people living with ALS/MND, shook the world. It raised hope, awareness and a bucket load of money to invest in research, care, support and assistive technology. The Ice Bucket Challenge provided people everywhere a care-free and easy but effective mechanism to demonstrate their support for the fight against ALS/MND and to raise funds for the cause. This phenomenon raised over $200 million worldwide, the largest single fundraising idea in ALS/MND history. The IBC has become an exemplar in Marketing and Fundraising courses around the world, extending recognition and awareness of ALS/MND. Peter, Patrick and Anthony spread the Challenge across the world through social media, creating a viral storm. They proved that a fun but serious event could change the world of ALS/MND. And it has. As the founders of the Ice Bucket Challenge, Peter Frates, Patrick Quinn and Anthony Senerchia, Jr., are worthy recipients of the Humanitarian Award for 2017.

This award was formally presented on December 8, 2017, during the Opening Ceremony of the International Symposium on ALS/MND. Nancy Frates accepted on behalf of her son Pete, Pat Quinn and the Senerchia family. Sadly, Anthony Senerchia, Jr., lost his battle with ALS/MND on November 25, 2017, at the age of 46. 

Nominations for the Humanitarian Award are considered from 1 May through 1 October annually; the awards are presented each year during the opening ceremony of the International Symposium on ALS/MND.

Click here to access the Humanitarian Award Nomination Form
(The 2017 deadline has elapsed. You may submit a nomination starting 1 May 2018.)

For more information, contact the Alliance Coordinator at coordinator@als-mnd.org.

Previous Winners

2000 The MND Association of England, Wales and Northern Ireland

2001 Yuko Matsuoka

2002 Dee Holden Norris

2003 Dr. David Oliver

2005 The MND Association of South Africa

2006 Mrs. Misao Hashimoto

2007 Tricia Holmes

2008 Rodney Harris

2009 Professor Kathy Mitchell

2010 Jette Moeller

2011 Danny Reviers and Mia Mahy

2012 Gudjon Sigurdsson

2013 Dr. Jeffrey Dietch

2014 Wendy Abrams

2015 Jesus Mora

2016 James Allen Heywood and Benjamin Heywood