Every year, the International Alliance of ALS/MND Associations presents two awards to recognise excellence in the ALS/MND community. The awards are described below, along with a list of previous winners.

Nominations for each of the awards are considered from 1 May through 1 October annually; the awards are presented each year during the opening ceremony of the International Symposium on ALS/MND.

Click here to access the Forbes Norris Award Nomination Form (Nominations will open May 1)
Click here to access Humanitarian Award Nomination Form (Nominations will open May 1)

People and organisations who work with ALS/MND are encouraged to identify exceptional contributors in the field and nominate them as potential recipients of these awards. For more information, contact the Alliance Coordinator at

The Forbes Norris Award

The Forbes Norris Award, first presented in 1994, honours the memory of Dr. Forbes “Ted” Norris (1928 – 1993), a neurologist who dedicated his career to helping people with ALS/MND. The purpose of this prestigious Award is to encourage a combination of two major qualities: management of and advances in understanding ALS/MND, to the benefit of people living with the disease.


The recipient of the 2016 Forbes Norris Award is Dr. Mamede de Carvalho. Dr. de Carvalho is a Portuguese physician who has contributed enormously to the care, treatment and management of people with ALS/MND over the last 20 years. He has published more than 250 research papers, and his work has defined appropriate assessment and monitoring parameters for respiratory management. He has also contributed to nutrition and to general aspects of ALS/MND care. His neurophysiological studies are highly regarded, and he was recently recognised by his appointment to the Chair of Physiology in the University of Lisbon, where he is Director of the Physiology Institute, in addition to his continuing role as a Neurologist and Clinical Neurophysiologist. Above and beyond his work in Portugal, Dr. de Carvalho has been instrumental in helping investigators in Brazil and other South American countries establish care and research programs in ALS/MND. He is the founder and enthusiastic supporter of the Portuguese ALS Association, which provides assistance to people with ALS/MND. He is a fine example to investigators both in rich and developing countries as to what can be accomplished through dedication, hard work and enthusiasm.

Previous Winners

1994 Professor Vincent Meininger

1995 Dr. Teepu Siddique

1996 Dr. Donald Mulder

1997 Professor Nigel Leigh

1998 Dr. Hiroshi Mitsumoto

1999 Dr. Andrew Eisen

2000 Professor Michael Swash

2001 Dr. Lewis P. (Bud) Rowland

2002 Professor Vianney DeJong

2003 Dr. Robert H. Brown

2004 Dr. Robert G. Miller

2005 Dr. Stanley Appel

2006 Dr. Walter G. Bradley

2007 Dame Professor Pamela Shaw

2008 Dr. Michael Strong

2009 Professor Christopher Shaw

2010 Dr. Edward Kasarskis

2011 Professor Orla Hardiman

2012 Dr. Benjamin Brooks

2013 Dr. Leonard van den Berg

2014 Dr. Matthew Kiernan

2015 Dr. Terry Heiman-Patterson


The Humanitarian Award

The Humanitarian Award was inaugurated in 2000 by the International Alliance of ALS/MND Associations to recognise a non-scientific contribution to the fight against ALS/MND. The Humanitarian Award is intended to recognise and encourage individuals and/or groups whose work makes, or has made, a contribution of international significance for people affected by ALS/MND.

Jamie and Ben HeywoodThe recipients of the 2016 Humanitarian Award are James Allen Heywood and Benjamin Heywood. When their brother was diagnosed with ALS at the age of 29, Jamie and Ben were devastated at his prognosis and at the lack of effective treatments for the disease. They saw first-hand how isolating ALS/MND can be. They took up these challenges as a family and, with family and friends, founded two organisations: one tasked with finding effective treatments for the condition, and the other to tackle social isolation and to collect anecdotal data on what drugs, interventions or supplements might make a difference to people with ALS/MND. Today, these organisations are known as ALS Therapy Development Institute and PatientsLikeMe. PatientsLikeMe is now open to anyone and deals with patients affected by 2,000 different health conditions. Both organisations have been instrumental in facilitating publications by staff and collaborators in prestigious journals such as the BMJ, Neurology and Nature and have been cited literally thousands of times in other peer-reviewed journals. 

Previous Winners

2000 The MND Association of England, Wales and Northern Ireland

2001 Yuko Matsuoka

2002 Dee Holden Norris

2003 Dr. David Oliver

2005 The MND Association of South Africa

2006 Mrs. Misao Hashimoto

2007 Tricia Holmes

2008 Rodney Harris

2009 Professor Kathy Mitchell

2010 Jette Moeller

2011 Danny Reviers and Mia Mahy

2012 Gudjon Sigurdsson

2013 Dr. Jeffrey Dietch

2014 Wendy Abrams

2015 Jesus Mora