Latest newsletter: ALS/MND Without Borders

February 3, 2020 by

Here, you’ll find the latest Alliance news, and updates from our Member Associations around the globe. Thank you for standing united with us in the worldwide fight against ALS/MND. #ALSMNDWithoutBorders

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@saintmarys Congratulations Cathy! July 8, 2020 11:17 am
A3 continued: There are lots of considerations such as remote consent forms, the safety of breathing evaluations, r… https://t.co/uB4KMyTqrw June 25, 2020 8:06 pm
A3: We can confidently tell you that both the trial sites and the broader ALS/MND community is working very hard to… https://t.co/nRmGDDVmEg June 25, 2020 8:06 pm
They are always referred to individual sites. Is anyone addressing the this? June 25, 2020 8:06 pm
Q3: People in clinical trials have a vested interest in knowing the overall delay in the trial. They are well aware… https://t.co/fjCWZZbiPh June 25, 2020 8:06 pm
A2: 2.Note: we only had one American presenter, the others were from England, Canada and the Netherlands. However,… https://t.co/2nsjrRpnX3 June 25, 2020 8:06 pm
Q2: Any updates on the shortages of supplies that vented people with ALS were experiencing in the US? June 25, 2020 8:06 pm
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2 weeks ago the International Alliance had a webinar about Emerging from the Pandemic where 3 questions didn’t show… https://t.co/wzuZu8M3ef June 25, 2020 8:06 pm
This is an idea the ALS/MND community can borrow to help all mask wearers seem more approachable. Nothing is the sa… https://t.co/KtF17sgPzS June 25, 2020 2:50 pm
In honour of Global Day for ALS/MND Awareness, Humanitarian Award winner, @darioryba from @AsociacionELAar ,shares… https://t.co/az72hGUfix June 23, 2020 10:40 pm

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