• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • Twitter

International Alliance of ALS/MND Associations

  • Members’ Login
  • Contact
  • Join
  • Donate
  • What is ALS/MND?
  • Events
    • Alliance Meeting 2021
    • Allied Professionals Forum 2021
    • ALS/MND Connect 2021
    • International Symposium on ALS/MND 2021
    • Awards
    • Webinars
  • March of Faces
  • Find an Association
  • Support for Members
    • Partnership Programme
    • Mentorship Programme
    • Alliance Support Grant
  • Advocacy
    • Advocacy Toolkit
    • Rights of People with ALS/MND
    • Biogen – Tofersen
    • BrainStorm Cell Therapeutics – NurOwn
    • Collaborative Medicinal Development – CuATSM
    • Cytokinetics – Reldasemtiv
    • Right to Try
    • Unproven (Off-Label) Treatments
    • US FDA Orphan Drug Designation
    • T Regulatory Cell Therapies
    • Amylyx – AMX0035
    • Kadimastem – AstroRx
  • Global Day
  • Resources
    • Submit a Resource
  • Newsletters
  • About
    • About the Alliance
    • Newsletter subscription
    • Board of Directors
    • Committees/Advisory Councils
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Innovation and Technology Council
      • Governance Committee
      • Budget and Finance Committee
    • Staff
    • History

Click here for Coronavirus (COVID-19) updates

Mentorship Programme

About Mentorship

The Alliance has promoted the Partnership Programme to help member associations increase their capacity to develop services, education and support for people living with ALS/MND, and to encourage them to share resources and experiences .

Partnership activities have included educational visits, advocacy, practical advice and more. These activities involve a person or organisation with skills, experience or knowledge, sharing with someone who has requested assistance in specific areas.

Partnership activities have resulted from personal contact at the Annual Alliance Meeting or offers and acceptance of assistance. Often, these activities have been supported by Alliance Support Grants. Some activities have been solely funded by the partners.

The Alliance is now formalising the Mentorship Programme to promote the sharing of expertise and knowledge and to develop leadership and capacity within ALS/MND associations.

Mentorship is a process through which an Alliance Mentor accepts responsibility to guide a Mentee on aspects of organisational management, governance, programming, service provision or other areas where the Mentor has experience and expertise.

In general, the purpose of mentoring is to support individual development by providing both career and psychosocial support. It is essential that a Mentor can draw on personal expertise and experience. They may also consult “subject experts” who have more detailed or specific knowledge of a particular issue.

A Mentor does not just tell the Mentee what to do. In the context of the Alliance, when member organisations seek support via mentoring, the Mentor’s role is to provide expert advice and reflect on their experiences to offer input on what direction a Mentee might pursue. A Mentor should also flag key challenges that may arise and help the Mentee develop a plan to face those challenges.

Who are Mentors?

Read the role description here. Our Mentors are people who have a breadth of knowledge about running an ALS/MND organization or providing services to people with ALS/MND. They also have the time and ability to learn about the Mentee and the issues they want to address, recognising the need to understand their environment and culture. Mentors may enlist available “subject experts” who have expertise in a specific subject area to assist them in their mentorship work.

Mentors have a high level of commitment. It takes experience and skills: the ability to see the bigger, overall picture and the place of the organisation and its activities within that picture. Being a Mentor requires understanding the role as well as the cultural and social context. It also requires as a desire to learn about the people and organisation you are mentoring. It takes passion.

Mentors are not simply a list of names and qualifications. Mentors self-identify and apply. They are selected for their skills, experience and mentorship capacity, as well as availability and commitment.

How do I become a Mentor?

Apply here to become a Mentor.

A Committee appointed by the Alliance Board, with experience in mentorship, will review Mentor applications, identify appropriate applicants and create a Mentors Panel. Applicants not selected will be offered advice to help them add to their skills and experience and will then be encouraged to reapply.

Consideration should be given to supporting Mentors to attend the Alliance meetings to develop contacts, expand mentoring opportunities with members, and enhance their global knowledge.

Mentors must be existing Alliance members.

Who are Mentees?

The Alliance is a broad spectrum of ALS/MND organisations with different levels of development and service delivery. Some are mature and well-established, while others are new and emerging, and there are plenty in-between. All of these member organisations share similar goals – to provide the best quality support and care, to find a cure, to support research, to increase public awareness, to raise funds and govern well. All organisations are made up of individuals who have different levels of expertise and different experience.

Alliance members have the opportunity to receive the benefits of mentorship. The sharing of knowledge and experience can enhance every member that seeks mentorship support.

A “Mentee” is an Alliance member who seeks help from a Mentor. Mentees are individuals or organisations that need the assistance and support of a guide – to help them through processes of change and development, of initiative and implementation, of development and growth. The goal of Alliance mentorships is to improve a member’s ability to provide care, services or programmes to people with ALS/MND, whether individually or through an organisation.

How do I become a Mentee?

Apply here to become a Mentee.

On the application, Mentees will be asked to identify a specific area they would like to develop. Remember: the more specific and targeted your goals are, the better the outcome of a Mentorship will be. Being specific about where you need support will allow the Committee to match you with the best Mentor for the job.

A Committee appointed by the Alliance Board will review Mentee applications. For each request, they will try to match the Mentee with an appropriate Mentor, someone with relevant experience, skills and knowledge.

Mentees can be ALS/MND organisations or key staff or volunteers within them. Where the Mentee is the organisation, that organisation should identify the key person or group of people for the task or challenge at hand.  Where the Mentee is an individual, that individual’s personal and professional development should ultimately be aimed at improving their ability to provide support to people with ALS/MND.

What is the Alliance’s role?

The Alliance role is to be a broker – to bring together those who seek a Mentor and those that offer to be one. Through the applications for Mentors and Mentees, the Alliance matches those who need with those who can.

The Alliance also promotes quality assurance, provides oversight for Mentors and Mentees, encourages mentoring relationships and maintains the Mentorship Programme. The Alliance assumes responsibility for managing official mentorship projects. This includes the vetting and appointment of official Alliance Mentors. Mentors are the face of this Alliance program. It also includes providing oversight for each mentoring project, ensuring that timelines are met, that meetings are held and that progress is achieved.

Finally, the Alliance is responsible for the ongoing development and modification of the Mentorship Programme. As an element of the Alliance Partnership Programme, it will be grow through members’ experience and outcomes, and the Alliance will share and promote members’ mentorship stories.

All mentors and mentees who are supported by the Alliance will be asked to report on their activities and, if possible, to present at the Annual Alliance Meeting.

 

Primary Sidebar

  • Marcel R. Wernard, Diagnosed 2016 - ALS Patients Connected, The Netherlands

    Marcel R. Wernard, Diagnosed 2016 – ALS Patients Connected, The Netherlands

  • Danny Reviers, Diagnosed 1979 - ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 – ALS Liga België, Belgium

  • Roxana Canova, Diagnosed 2012 - Asociación ELA Argentina

    Roxana Canova, Diagnosed 2012 – Asociación ELA Argentina

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

  • Angie Bordaen, Diagnosed 2014 - ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014 – ALS Liga België, Belgium

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Erwin Coppejans, Diagnosed 2007 - ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 – ALS Liga België, Belgium

  • David Watson, MND Scotland, Diagnosed 2018, Scotland

    David Watson, MND Scotland, Diagnosed 2018, Scotland

  • Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

    Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

  • Ian Roberts

    Ian Roberts

  • Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • Brian Lovell, Diagnosed 2011 - MND Australia

    Brian Lovell, Diagnosed 2011 – MND Australia

  • Mike Rannie, ALS Canada, Diagnosed 2017, Canada

    Mike Rannie, ALS Canada, Diagnosed 2017, Canada

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Eddy LeFrançois, Diagnosed 1992 - ALS Canada

    Eddy LeFrançois, Diagnosed 1992 – ALS Canada

  • Alejandro Aquino, Diagnosed 2011 - Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 – Asociación ELA Argentina

  • Joy Blakeley, Diagnosed 2017 - MND Australia

    Joy Blakeley, Diagnosed 2017 – MND Australia

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Josée Kolijn-de Man, Diagnosed 2015 - ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 – ALS Patients Connected, The Netherlands

  • Monica Soriano, Diagnosed 2011 - Asociación ELA Argentina

    Monica Soriano, Diagnosed 2011 – Asociación ELA Argentina

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Karl Hughes, Diagnosed 2010 - IMNDA, Ireland

    Karl Hughes, Diagnosed 2010 – IMNDA, Ireland

  • Chris McCauley, Diagnosed 2015 - ALS Canada

    Chris McCauley, Diagnosed 2015 – ALS Canada

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Wilfried Leusing, Diagnosed 2010 - DGM, Germany

    Wilfried Leusing, Diagnosed 2010 – DGM, Germany

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Carlos Gomez Matallanas, Diagnosed 2014 - FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 – FUNDELA, Spain

  • Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

  • Charlie “Hark” Dourney, Diagnosed 2007 - Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 – Hark ALS, USA

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Francisco Perez Palop, Diagnosed 2013 - FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 – FUNDELA, Spain

  • Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

  • Zelina-Brito-Diagnosed-2018-Brazil

    Zelina-Brito-Diagnosed-2018-Brazil

  • Lachlan Terry, MND Australia, Diagnosed 2015, Australia

    Lachlan Terry, MND Australia, Diagnosed 2015, Australia

  • Joanne Pratt, Diagnosed 2011 - MND Australia

    Joanne Pratt, Diagnosed 2011 – MND Australia

  • Conny van der Meijden, Diagnosed 2001 - ALS Netherlands

    Conny van der Meijden, Diagnosed 2001 – ALS Netherlands

  • Margreth Burger-Saile, Diagnosed 2011 - ALS Schweiz, Switzerland

    Margreth Burger-Saile, Diagnosed 2011 – ALS Schweiz, Switzerland

  • Philip Brindle, MND Association, Diagnosed 2015, England

    Philip Brindle, MND Association, Diagnosed 2015, England

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Osiel Mendoza, Diagnosed 2016 - ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 – ALS Therapy Development Institute, USA

  • Sally Pauls, Diagnosed 2006 - Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 – Les Turner ALS Foundation

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

Learn more about the March of Faces

Support for members

  • Partnership Programme
  • Mentorship Programme
  • Alliance Support Grant

Allied Professionals Forum Registration

The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones on 3 – 4 December 2020.

Click here to register for the Allied Professionals Forum

Footer

Support the Alliance

Please donate

Please consider making a donation to support our work. Thank you!

Latest Tweets

  • Creativity takes Courage! (Henri Matisse)In celebration of World Art Day (April 15th), tag an artist or share this… https://t.co/yfn4D6gmmA April 14, 2021 12:00 am
  • https://t.co/aKxWOqKnDZ @AsociacionELAar #ALSMNDWithoutBorders April 13, 2021 8:48 pm
  • maybe there is an opportunity for @TaylorMadeGolf to outfit wheelchairs around the world! #ALSMNDWithoutBorders https://t.co/qWFfwdJ3Eg April 13, 2021 3:36 pm

Keep in touch

Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

Return to top of page
  • Disclaimer
  • Privacy notice & Cookies
  • Sitemap

Copyright © 2021 The International Alliance of ALS/MND Associations. All rights reserved.

Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login