Useful links

The International Alliance of ALS/MND Associations has created this section to assist people interested in ALS/MND to pursue information about the disease, research, and supporting organisations. Links to web sites below are monitored and checked on a regular basis. Please advise the Alliance Coordinator at coordinator@als-mnd.org if any link is inoperable. The Alliance wishes to thank all those people who have collected links regarding ALS/MND and from whom we have borrowed freely in the interests of people living with ALS/MND.

The Alliance has not evaluated the information contained on sites mentioned below. In some cases, the Alliance has not checked that the links are currently operable. The sites have been included in this page because people with the disease, organisations, and researchers have recommended that they be included. The Alliance takes no responsibility for the information provided in web sites accessed from this page. Please see our standard disclaimer.

If you wish to add sites to this page, please send the web page address with a short description of the site to the Alliance Coordinator at coordinator@als-mnd.org. We ask that all links are ALS/MND specific, and that each link is suggested or approved by an Alliance member association.

Please note: You may access the Alliance’s directory of ALS/MND associations here.

ALS/MND Research

The International Alliance recognises that people living with ALS/MND, friends, family, and healthcare professionals are regularly seeking information on research into ALS/MND.  We have collected from our members web sites that publish research reports and the outcomes of research into ALS/MND. The Alliance does not have the skills or resources to review research outcomes, to interpret research, or to distribute research papers.

The ALS Association Research Program (USA)

ALS C.A.R.E. Database

ALS Canada Research Program

ALS Genetic Mutations Database

The ALS Research Forum 

The ALS TDI Research Center (USA)

The European Network for the Cure of ALS (ENCALS)

Les Turner ALS Research Initiative (USA)

McKnight Endowment Fund for Neuroscience

The MND Research Blog (UK)

The MND Research Institute of Australia (MNDRIA)

National Registry of Veterans with Amyotrophic Lateral Sclerosis (USA)

The Northeast ALS Consortium (NEALS): Clinical Research and Trials (USA)

Project MinE

The World Federation of Neurology (WFN) Research Group on Motor Neuron Diseases

ALS/MND Movies and Documentaries

2 or 3 Years (Russian documentary)

Gleason (American documentary)

I Am Breathing (Scottish documentary and winner of a British Academy Scotland Award for Best Director)

The Theory of Everything (Based on the story of Stephen Hawking)

You’re Not You (American drama)

 

Please advise the Alliance Coordinator (coordinator@als-mnd.org) of errors or changes to the listed sites. Note that this is not a comprehensive list, nor has every site been reviewed. It is simply a starting point for information about ALS/MND.