…nt of The ALS Association in December 2017. She joined the organization in June 2016 as the Executive Vice President of Strategy, leading all three mission areas, including global research,… Continue Reading about Board of Trustees
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Member Roundtables
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Amylyx – AMX0035
…negative opinion on a conditional Marketing Authorization for AMX0035. In June 2023 the European Medicine Agency (EMA) gave a negative opinion on AMX0035 based on the CENTAUR results. Amylyx asked… Continue Reading about Amylyx – AMX0035
Unproven (Off-Label) Treatments
…people living with the disease as soon as possible. International Alliance of ALS/MND Associations June 2020 The original language of communication is English and any translation cannot be… Continue Reading about Unproven (Off-Label) Treatments
Right to Try
…on where risk is minimized and safety data can be collected. International Alliance of ALS/MND Associations June 2020 The original language of communication is English and any translation… Continue Reading about Right to Try