• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Sitemap

Pages:

  • Donate
  • Register
    • Edit Your Profile
    • Update Billing Card
    • Welcome
    • Your Membership
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • R.A.C.E. To Diagnose ALS/MND
  • Understanding ALS/MND
    • What is ALS/MND?
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Support for PALS & CALS
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • SPG302
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • About the Alliance
    • ALS/MND Health Literacy Map
    • Who We Are
    • Board of Trustees
    • Councils, Forums & Committees
      • PALS and CALS Advisory Council
      • Scientific Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Contact Us
  • Disclaimer
  • Find ALS/MND associations around the world
  • International Alliance of ALS/MND Associations
  • Join the Alliance
    • Member Registration
  • Make a donation
  • Newsletter subscription
  • Privacy notice & Cookies
  • Programs & Events
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • Alliance Meeting
    • Allied Professionals Forum
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Alliance Fellows
      • Global CRLI Program
    • Patient Fellows Program
    • SEED Grant Program
    • International Symposium
  • Sitemap
  • Member Roundtables
  • 2027 Calendar Project
  • March of Faces
  • Member Webinars
  • Annual Meetings Travel Grant
  • Submit an Event
  • Submit a Resource

Recent Posts:

    Primary Sidebar

    • Mary Thomas, Australia

      Mary Thomas, Australia

    • Tso-Ta Huang, Taiwan

      Tso-Ta Huang, Taiwan

    • Malcolm Buck, Australia

      Malcolm Buck, Australia

    • Fayette Underwood, USA

      Fayette Underwood, USA

    • Purningam Jacob, India

      Purningam Jacob, India

    • Angela Jansen, Germany

      Angela Jansen, Germany

    • Teddy Hanono Annie, Mexico

      Teddy Hanono Annie, Mexico

    • Shaleen Latchman, Canada

      Shaleen Latchman, Canada

    • Imelda Arenas, Colombia

      Imelda Arenas, Colombia

    • Aida Trzmiel de Guterman, Argentina

      Aida Trzmiel de Guterman, Argentina

    • Laurie Petit-Jean, France

      Laurie Petit-Jean, France

    • Gudjon Sigurdsson, Iceland

      Gudjon Sigurdsson, Iceland

    • Francisco Perez Palop, Spain

      Francisco Perez Palop, Spain

    • JP

      JP

    • Leon Ryba, Argentina

      Leon Ryba, Argentina

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Yolanda Armendariz, Mexico

      Yolanda Armendariz, Mexico

    • Sharon Corosanite, USA

      Sharon Corosanite, USA

    • Anderson Custodio Pinto, Brazil

      Anderson Custodio Pinto, Brazil

    • Brian Lovell, Australia

      Brian Lovell, Australia

    • Gudjon Sigurdsson, Iceland

      Gudjon Sigurdsson, Iceland

    • Oscar Mauricio Linares, Colombia

      Oscar Mauricio Linares, Colombia

    • Maria Lucia Wood Saldanha, Brazil

      Maria Lucia Wood Saldanha, Brazil

    • Wiebke Braach, Germany

      Wiebke Braach, Germany

    • Fernando Ocampo Cardona, Colombia

      Fernando Ocampo Cardona, Colombia

    • Mike Cels, Canada

      Mike Cels, Canada

    • Richard Clark, New Zealand

      Richard Clark, New Zealand

    • Camilla Heiberg Freiberg, Denmark

      Camilla Heiberg Freiberg, Denmark

    • Elkin Gaviria, Colombia

      Elkin Gaviria, Colombia

    • Ali Var, Turkey

      Ali Var, Turkey

    • Duncan Bayly, Australia

      Duncan Bayly, Australia

    • Bob Spurrier, USA

      Bob Spurrier, USA

    • Motoko Ogasawara, Japan

      Motoko Ogasawara, Japan

    • Claire Garry, USA

      Claire Garry, USA
      20200117_214643

    • Yannick Richard, Canada

      Yannick Richard, Canada
      yannickrichard

    • Anna Barrow, UK

      Anna Barrow, UK

    • Seckin McGuirk, England

      Seckin McGuirk, England

    • Erwin Coppejans, Belgium

      Erwin Coppejans, Belgium

    • Jon Newsome, USA

      Jon Newsome, USA

    • Steve Gallagher, Canada

      Steve Gallagher, Canada
      Picture1

    • Dick Dayton, USA

      Dick Dayton, USA

    • Jon Newsome, USA

      Jon Newsome, USA

    • Irene McCaughey, Australia

      Irene McCaughey, Australia

    • John Russo, USA

      John Russo, USA
      final3878

    • Angie Bordaen, Belgium

      Angie Bordaen, Belgium

    • Alex, Argentina

      Alex, Argentina

    • Wilfried Leusing, Germany

      Wilfried Leusing, Germany

    • Chen Chun-Chin, Malaysia

      Chen Chun-Chin, Malaysia

    • Magdalena Ayala Rodríguez, Mexico

      Magdalena Ayala Rodríguez, Mexico

    • Olga Cosentino, Argentina

      Olga Cosentino, Argentina

    Learn more about the March of Faces

    Footer

    Stay connected to the global ALS/MND community.

    Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login