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International Alliance of ALS/MND Associations

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      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
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Recent Posts:

    Primary Sidebar

    • Jo Knowlton and her dog, Scotland

      Jo Knowlton and her dog, Scotland

    • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

      Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

    • Alan Liz Ogg 29042016 000799 lo res

      Alan Liz Ogg 29042016 000799 lo res

    • Den Haag, Diagnosed 2016 , The Netherlands

      Den Haag, Diagnosed 2016 , The Netherlands

    • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

      Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

    • Brian Parsons

      Brian Parsons

    • David Bishop

      David Bishop

    • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

      Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

    • Nicholas (Nic) Bowman, MND Association of South Africa,  Diagnosed 2016,  Australia

      Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

    • JP

      JP

    • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

      Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Timothy Holman, Switzerland

      Timothy Holman, Switzerland

    • Mary Thomas, Diagnosed 2013 , MND Australia

      Mary Thomas, Diagnosed 2013 , MND Australia

    • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

      Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

    • Michael Lee, Australia

      Michael Lee, Australia

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Amparo Muriel Engativa, Colombia

      Amparo Muriel Engativa, Colombia

    • Guido De Mets, Belgium

      Guido De Mets, Belgium

    • Chris McCauley, Diagnosed 2015 , ALS Canada

      Chris McCauley, Diagnosed 2015 , ALS Canada

    • Chen Chun-Chin

      Chen Chun-Chin

    • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

      Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

    • Ali Var, Turkey

      Ali Var, Turkey

    • Bob Simonds and Drew O'Neil, USA

      Bob Simonds and Drew O’Neil, USA

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    • Natalya Rybakova, Russian Charity ALS Foundation

      Natalya Rybakova, Russian Charity ALS Foundation

    • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

      Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    • Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

      Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

    • Bjarne Hytjanstorp, ALS Norge, Norway

      Bjarne Hytjanstorp, ALS Norge, Norway

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

      Wilfried Leusing, Diagnosed 2010 , DGM, Germany

    • Fabio Carvalho

      Fabio Carvalho

    • Richard Clark, MND New Zealand,  Diagnosed 2011

      Richard Clark, MND New Zealand, Diagnosed 2011

    • Shay Rishoni

      Shay Rishoni

    • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

      Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

    • Duncan Bayly , MND Australia

      Duncan Bayly , MND Australia

    • Leon Ryba, Argentina

      Leon Ryba, Argentina

    • Bayley, Australia

      Bayley, Australia

    • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Rosie Riley, Les Turner ALS Foundation, USA

      Rosie Riley, Les Turner ALS Foundation, USA

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

      Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    • Roxana Canova, Diagnosed 2012 ,  Asociación ELA Argentina

      Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

    • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • Eric Von Schaumburg, USA

      Eric Von Schaumburg, USA

    Learn more about the March of Faces

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