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International Alliance of ALS/MND Associations

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      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
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      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
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Recent Posts:

    Primary Sidebar

    • Mike Rannie,  ALS Canada,  Diagnosed 2017

      Mike Rannie, ALS Canada, Diagnosed 2017

    • Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

      Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

    • Colm Francis Davis, Ireland

      Colm Francis Davis, Ireland

    • Philip Brindle,  MND Association,  Diagnosed 2015,  England

      Philip Brindle, MND Association, Diagnosed 2015, England

    • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

      Conny van der Meijden, Diagnosed 2001, ALS Netherlands

    • Stephanie Christiansen Hall, Canada

      Stephanie Christiansen Hall, Canada

    • Hanne Stenmose, Muskelsvindfonden, Denmark

      Hanne Stenmose, Muskelsvindfonden, Denmark

    • Daniel Hare

      Daniel Hare

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      Ian and Teresa Roberts

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Lombana, Spain

      Lombana, Spain

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      Claire Garry, USA
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    • Phil Rossall, MND-Association, UK

      Phil Rossall, MND-Association, UK

    • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

      Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

    • Claudette Sturk, ALS Society of Canada

      Claudette Sturk, ALS Society of Canada
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    • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

      Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Claudia Gotti, Brazil

      Claudia Gotti, Brazil

    • Roxana Canova, Diagnosed 2012 ,  Asociación ELA Argentina

      Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

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      Chih Ching Darren Wong, MND Malaysia

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      Jack Buzby, USA

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      Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

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      Timmy, ALS Liga

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      Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

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      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

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      Steve Gallagher, ALS Society of Canada
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    • Rosie Riley, Les Turner ALS Foundation, USA

      Rosie Riley, Les Turner ALS Foundation, USA

    • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

      Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

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      Irene McCaughey, Diagnosed 2011, MND Australia

    • Brian Lovell, Diagnosed 2011 . MND Australia

      Brian Lovell, Diagnosed 2011 . MND Australia

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      Alberto Baez Murillo, Colombia

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

      Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    • Alan Liz Ogg 29042016 000799 lo res

      Alan Liz Ogg 29042016 000799 lo res

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      Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    • Ian Roberts

      Ian Roberts

    • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

      Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    • Greg Heydet, ALS Hope Foundation, USA

      Greg Heydet, ALS Hope Foundation, USA

    • March of Faces Photo Submission_OLGA_ELA ARGENTINA

      March of Faces Photo Submission_OLGA_ELA ARGENTINA

    • Lachlan Terry,  MND Australia,  Diagnosed 2015

      Lachlan Terry, MND Australia, Diagnosed 2015

    • Dr Shelly Hoover

      Dr Shelly Hoover

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

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      Bob Simonds and Drew O’Neil, USA

    • Oliver Juenke, DGM, Germany

      Oliver Juenke, DGM, Germany

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      Bjarne Hytjanstorp, ALS Norge, Norway

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      Chen Chun-Chin

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      JP

    Learn more about the March of Faces

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