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International Alliance of ALS/MND Associations

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    • Research
      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
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Recent Posts:

    Primary Sidebar

    • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

      Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Wendy Hendrickson, ALS Hope Foundation, USA

      Wendy Hendrickson, ALS Hope Foundation, USA

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Carlos Alberto Báez Murillo, ACELA, Colombia

      Carlos Alberto Báez Murillo, ACELA, Colombia

    • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    • Jorge Melo, ABrELA, Brazil

      Jorge Melo, ABrELA, Brazil

    • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

      Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

      Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

    • Bjarne Hytjanstorp, ALS Norge, Norway

      Bjarne Hytjanstorp, ALS Norge, Norway

    • Duncan Bayly , MND Australia

      Duncan Bayly , MND Australia

    • Fabio Carvalho

      Fabio Carvalho

    • Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

    • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

      Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    • Denis Blais, Diagnosed 2015 , ALS Canada

      Denis Blais, Diagnosed 2015 , ALS Canada

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      727747090571358167

    • Anita Forte, Les Turner ALS Foundation, USA

      Anita Forte, Les Turner ALS Foundation, USA

    • Ian Roberts

      Ian Roberts

    • Leon Ryba, Asociación ELA Argentina

      Leon Ryba, Asociación ELA Argentina

    • Christian Bär, Germany

      Christian Bär, Germany

    • Ian Gale, MND Australia

      Ian Gale, MND Australia

    • Jeff Sutherland

      Jeff Sutherland
      jspic

    • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • IMG_1211

      IMG_1211

    • Natalya Rybakova, Russian Charity ALS Foundation

      Natalya Rybakova, Russian Charity ALS Foundation

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • Jo Knowlton and her dog, Scotland

      Jo Knowlton and her dog, Scotland

    • Juvenal Bayona Romero

      Juvenal Bayona Romero

    • Michael Lee, Australia

      Michael Lee, Australia

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

      Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

      Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

    • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

    • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

      Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    • John Dinon, MND Australia

      John Dinon, MND Australia

    • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

      Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

    • Jean

      Jean
      jean

    • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

      Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

      Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    • Stephanie Christiansen Hall, Canada

      Stephanie Christiansen Hall, Canada

    • Nicholas (Nic) Bowman, MND Association of South Africa,  Diagnosed 2016,  Australia

      Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

      Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

    • Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

      Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

      H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    • Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

      Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    • Chen Chun-Chin

      Chen Chun-Chin

    • Zelina Brito, Diagnosed 2018, Brazil

      Zelina Brito, Diagnosed 2018, Brazil

    Learn more about the March of Faces

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