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International Alliance of ALS/MND Associations

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      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
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Recent Posts:

    Primary Sidebar

    • Armando González Gómez, ACELA, Colombia

      Armando González Gómez, ACELA, Colombia

    • Anita Forte, Les Turner ALS Foundation, USA

      Anita Forte, Les Turner ALS Foundation, USA

    • Willi Klein

      Willi Klein

    • Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

      Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

    • Duncan Bayly , MND Australia

      Duncan Bayly , MND Australia

    • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

    • John and Loretta Russo, USA

      John and Loretta Russo, USA
      final3878

    • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

      Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

      Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Liam Dwyer, England

      Liam Dwyer, England

    • Brian Lovell, Diagnosed 2011 . MND Australia

      Brian Lovell, Diagnosed 2011 . MND Australia

    • Den Haag, Diagnosed 2016 , The Netherlands

      Den Haag, Diagnosed 2016 , The Netherlands

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

      Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

      Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    • Mark Miller

      Mark Miller

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Ian Roberts

      Ian Roberts

    • JP

      JP

    • Dick Dayton, USA

      Dick Dayton, USA

    • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

      Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Wendy Hendrickson, ALS Hope Foundation, USA

      Wendy Hendrickson, ALS Hope Foundation, USA

    • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

      Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

      Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Claire Garry, USA

      Claire Garry, USA
      20200117_214643

    • Fabio Carvalho

      Fabio Carvalho

    • Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

      Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

    • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

      Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

    • Joanne Pratt, Diagnosed 2011 , MND Australia

      Joanne Pratt, Diagnosed 2011 , MND Australia

    • Steven Spencer, Diagnosed 2014 , MND New Zealand

      Steven Spencer, Diagnosed 2014 , MND New Zealand

    • Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

      Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    • Mary Thomas, Diagnosed 2013 , MND Australia

      Mary Thomas, Diagnosed 2013 , MND Australia

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

      Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    • Timothy Holman, Switzerland

      Timothy Holman, Switzerland

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • Fernando Ocampo Cardona, Colombia

      Fernando Ocampo Cardona, Colombia

    • Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

      Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

      H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    • Alberto Baez Murillo, Colombia

      Alberto Baez Murillo, Colombia

    • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

      Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Denis Blais, Diagnosed 2015 , ALS Canada

      Denis Blais, Diagnosed 2015 , ALS Canada

    Learn more about the March of Faces

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