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International Alliance of ALS/MND Associations

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      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
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Recent Posts:

    Primary Sidebar

    • Rosie Riley, Les Turner ALS Foundation, USA

      Rosie Riley, Les Turner ALS Foundation, USA

    • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

      Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Ann Nicol

      Ann Nicol

    • Philip Brindle,  MND Association,  Diagnosed 2015,  England

      Philip Brindle, MND Association, Diagnosed 2015, England

    • Andrea Zicchieri, Associazione conSLAncio Onlus, Italy

      Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
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    • Ismail Gokcek, Turkey

      Ismail Gokcek, Turkey
      ismail_gokcek_alsmnd_tr

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Inta Grubb, Diagnosed 2014,  MND Australia

      Inta Grubb, Diagnosed 2014, MND Australia

    • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

      Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • John and Loretta Russo, USA

      John and Loretta Russo, USA
      final3878

    • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

      Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

    • IMG_1211

      IMG_1211

    • Den Haag, Diagnosed 2016 , The Netherlands

      Den Haag, Diagnosed 2016 , The Netherlands

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Frank "Papa" Taylor, USA

      Frank “Papa” Taylor, USA

    • Jan Zuring, Diagnosed 2010 , The Netherlands

      Jan Zuring, Diagnosed 2010 , The Netherlands

    • Alan Liz Ogg 29042016 000799 lo res

      Alan Liz Ogg 29042016 000799 lo res

    • Bayley, Australia

      Bayley, Australia

    • JP

      JP

    • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

      Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    • Cath Muir

      Cath Muir
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    • Claudette Sturk, ALS Society of Canada

      Claudette Sturk, ALS Society of Canada
      Picture2

    • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

      Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

      Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

    • Oliver Juenke, Germany

      Oliver Juenke, Germany

    • Art Eggert, USA

      Art Eggert, USA

    • Jon Newsome, Les Turner ALS Foundation, USA

      Jon Newsome, Les Turner ALS Foundation, USA

    • David Bishop

      David Bishop

    • Kris Van Reusel, Belgium

      Kris Van Reusel, Belgium

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Chen Chun-Chin

      Chen Chun-Chin

    • Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

      Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

    • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

      Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    • Joanne Pratt, Diagnosed 2011 , MND Australia

      Joanne Pratt, Diagnosed 2011 , MND Australia

    • Greg Heydet, ALS Hope Foundation, USA

      Greg Heydet, ALS Hope Foundation, USA

    • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

      Eddy LeFrançois, Diagnosed 1992, ALS Canada

    • Ali Var, Turkey

      Ali Var, Turkey

    • Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

      Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

    • Roy

      Roy
      roy

    • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    • Dad

      Dad

    • Jon Newsome, USA

      Jon Newsome, USA

    • Len Johnrose,  MND Association,  Diagnosed 2017,  England

      Len Johnrose, MND Association, Diagnosed 2017, England

    • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

      Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    • Christian Bär, Germany

      Christian Bär, Germany

    • March of Faces Photo Submission_ALEX_ELA ARGENTINA

      March of Faces Photo Submission_ALEX_ELA ARGENTINA

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    Learn more about the March of Faces

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