• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • Diagnostic Delay (in development)
  • Events/Programs
    • Calendar of Events/Programs
    • Alliance Meeting
    • Allied Professionals Forum
    • Alliance Webinars
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Patient Fellows Program
    • Global CRLI
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Sitemap

Pages:

  • Donate
  • Register
    • Edit Your Profile
    • Update Billing Card
    • Welcome
    • Your Membership
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • Diagnostic Delay (in development)
  • Support for PALS & CALS
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • About the Alliance
    • ALS/MND Health Literacy Map
    • Who We Are
    • Board of Trustees
    • Advisory Councils/Committees
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Scientific Advisory Council
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Meetings
      • Newsletters
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Contact Us
  • Disclaimer
  • Events/Programs
    • Alliance Webinars
    • Alliance Meeting
    • Allied Professionals Forum
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Global CRLI
      • Global CRLI Program
    • Patient Fellows Program
    • International Symposium
  • Find ALS/MND associations around the world
  • International Alliance of ALS/MND Associations
  • Join the Alliance
    • Member Registration
  • Make a donation
  • Newsletter subscription
  • Privacy notice & Cookies
  • Sitemap
  • What is ALS/MND?
  • 2025 AGM Information
  • Member Roundtables
  • 2026 Calendar Project
  • Call for Agenda Items
  • Call for Resolutions
  • March of Faces
  • Member Webinars
  • Annual Meetings Travel Grant
  • Submit an Event
  • Submit a Resource

Recent Posts:

    Primary Sidebar

    • Ismail Gokcek, Turkey

      Ismail Gokcek, Turkey
      ismail_gokcek_alsmnd_tr

    • JP

      JP

    • Malcolm Buck, Australia

      Malcolm Buck, Australia

    • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

      Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

      Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

    • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

      Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    • Oliver Juenke, DGM, Germany

      Oliver Juenke, DGM, Germany

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

      Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    • David Watson,  MND Scotland,  Diagnosed 2018

      David Watson, MND Scotland, Diagnosed 2018

    • Valdomiro Xavier Honório, Brazil

      Valdomiro Xavier Honório, Brazil

    • Dick Dayton, USA

      Dick Dayton, USA

    • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

      Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    • Mauril Belanger

      Mauril Belanger

    • Chen Chun-Chin

      Chen Chun-Chin

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Guido De Mets, Belgium

      Guido De Mets, Belgium

    • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

      Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

      Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

    • Irene McCaughey, Diagnosed 2011,  MND Australia

      Irene McCaughey, Diagnosed 2011, MND Australia

    • Lombana, Spain

      Lombana, Spain

    • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

      Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    • Dr Shelly Hoover

      Dr Shelly Hoover

    • Frank "Papa" Taylor

      Frank “Papa” Taylor

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • Duncan Bayly , MND Australia

      Duncan Bayly , MND Australia

    • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

      Eddy LeFrançois, Diagnosed 1992, ALS Canada

    • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

      Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    • Cath Muir

      Cath Muir
      Cath

    • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Wendy Hendrickson, ALS Hope Foundation, USA

      Wendy Hendrickson, ALS Hope Foundation, USA

    • Amparo Muriel Engativa, Colombia

      Amparo Muriel Engativa, Colombia

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

      Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

    • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

      Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Juvenal Bayona Romero

      Juvenal Bayona Romero

    • Chih Ching Darren Wong, MND Malaysia

      Chih Ching Darren Wong, MND Malaysia

    • Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

      Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

    • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Art Eggert, USA

      Art Eggert, USA

    • Denis Blais, Diagnosed 2015 , ALS Canada

      Denis Blais, Diagnosed 2015 , ALS Canada

    • Imelda Arenas, ACELA, Colombia

      Imelda Arenas, ACELA, Colombia

    • Peng Yi-Wen

      Peng Yi-Wen

    • Natalya Rybakova, Russia

      Natalya Rybakova, Russia

    • Ian Roberts

      Ian Roberts

    • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

      Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

      Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2025 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login