Alisa Brownlee, ATP, CAPS’ blog offers recent articles and web information on ALS, assistive technology, augmentative alternative communication (AAC), computer access, and other electronic devices that can impact and improve the quality of life for people with ALS. Email abrownlee@alsa-national.org. Any views or opinions presented on this blog are solely those of the author and do not necessarily represent those of The ALS Association.
United States of America
National ALS Registry (USA)
The National ALS Registry – run by the Center for Disease Control’s Agency for Toxic Substances and Disease Registry – is a new program to collect, manage and analyze data about people with ALS in the United States. The goal is to gather information to better understand the disease and improve care for people with ALS.
Research at the Les Turner ALS Research and Patient Center at Northwestern Medicine
Northwestern University Feinberg School of Medicine is known the world over for groundbreaking ALS research and the Les Turner ALS Foundation is proud to support three research laboratories here.
ALS Therapy Development Institute – Research Center
We are the world’s foremost drug discovery center focused solely on ALS. Pioneering the ‘nonprofit biotech’ model, we have placed the person with ALS at the center of every decision made in our labs. Our interdisciplinary, industry-trained team of scientists collaborate daily in our labs and through academic and pharmaceutical company partnerships across the globe to discover cures for ALS.
ALS Research Forum
The mission of the ALS Research Forum is to help accelerate development of new therapies for amyotrophic lateral sclerosis (ALS), by providing a trustworthy, open-access forum for research news and analysis, dedicated coverage of the latest industry news, and research tools and resources for the ALS research community.
The ALS Research Forum consists of ALS-related content developed through our partnership with the Alzforum, as well as independent news coverage, and a dynamic listing of current drug development efforts relevant to ALS. Additional resources include databases, such as ALSGene, listings of funding opportunities and scientific meetings, and research resources such as links to repositories and clinical trial registries.
We aim for this portal to benefit both veteran ALS researchers and those new to the ALS field, and to provide relevant information for researchers in both academia and industry. We welcome your feedback and input as we work together to make this site a powerful tool to encourage more people to research ALS.