• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Rosie Riley, USA

    Rosie Riley, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Mark Miller, UK

    Mark Miller, UK

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Ann Nicol, USA

    Ann Nicol, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Olga, Argentina

    Olga, Argentina

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • David Watson, Scotland

    David Watson, Scotland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login