• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • John Sweeney, USA

    John Sweeney, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Zabun Nassar, England

    Zabun Nassar, England

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Jack Buzby, USA

    Jack Buzby, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Bob Spurrier, USA

    Bob Spurrier, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login