• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Mark Miller, UK

    Mark Miller, UK

  • Dick Dayton, USA

    Dick Dayton, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Lombana, Spain

    Lombana, Spain

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Purningam Jacob, India

    Purningam Jacob, India

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Steve

    Steve

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Jean Waters, UK

    Jean Waters, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login