• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Steve

    Steve

  • Michael Lee, Australia

    Michael Lee, Australia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • John Russo, USA

    John Russo, USA
    final3878

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Glen Elison, USA

    Glen Elison, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • David Solomon, UK

    David Solomon, UK

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Ali Var, Turkey

    Ali Var, Turkey

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login