• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Rob Tison, USA

    Rob Tison, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Lee Millard, England

    Lee Millard, England

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Timmy, Belgium

    Timmy, Belgium

  • Mike Small, UK

    Mike Small, UK

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Susan Keldani, USA

    Susan Keldani, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Steve

    Steve

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login