• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jean

    Jean
    jean

  • Rob Tison, USA

    Rob Tison, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Bayley, Australia

    Bayley, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Olga, Argentina

    Olga, Argentina

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Ali Var, Turkey

    Ali Var, Turkey

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Len Johnrose, England

    Len Johnrose, England

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Susan Anderson, USA

    Susan Anderson, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Art Eggert, USA

    Art Eggert, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • John Dinon, Australia

    John Dinon, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • John Russo, USA

    John Russo, USA
    final3878

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login