• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Zabun Nassar, England

    Zabun Nassar, England

  • Steve

    Steve

  • Frank Taylor, USA

    Frank Taylor, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • John Sweeney, USA

    John Sweeney, USA

  • Lombana, Spain

    Lombana, Spain

  • Mike Small, UK

    Mike Small, UK

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • John Dinon, Australia

    John Dinon, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • David Hall, USA

    David Hall, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • David Watson, Scotland

    David Watson, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Susan Anderson, USA

    Susan Anderson, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Sally Pauls, USA

    Sally Pauls, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jon Newsome, USA

    Jon Newsome, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login