• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Animesh Kumar, India

    Animesh Kumar, India

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Ian Gale, Australia

    Ian Gale, Australia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Rob Tison, USA

    Rob Tison, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Susan Keldani, USA

    Susan Keldani, USA

  • Lombana, Spain

    Lombana, Spain

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login