• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Anna Barrow, UK

    Anna Barrow, UK

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Greg Heydet, USA

    Greg Heydet, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • John Russo, USA

    John Russo, USA
    final3878

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • David Hall, USA

    David Hall, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Glen Elison, USA

    Glen Elison, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Rob Tison, USA

    Rob Tison, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jean

    Jean
    jean

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login