• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Ali Var, Turkey

    Ali Var, Turkey

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Lee Millard, England

    Lee Millard, England

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Bayley, Australia

    Bayley, Australia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Lombana, Spain

    Lombana, Spain

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jean

    Jean
    jean

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Bob Simonds, USA

    Bob Simonds, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • David Bishop, UK

    David Bishop, UK

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Mary Thomas, Australia

    Mary Thomas, Australia

Learn more about the March of Faces

Footer

Subscribe to our Bi-monthly Newsletter

Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

"*" indicates required fields

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login