• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Mark Miller, UK

    Mark Miller, UK

  • Susan Anderson, USA

    Susan Anderson, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Lombana, Spain

    Lombana, Spain

  • Jon Newsome, USA

    Jon Newsome, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jay Epstein, USA

    Jay Epstein, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Phil Rossall, UK

    Phil Rossall, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Hollister

    Hollister
    hollister

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Philip Brindle, England

    Philip Brindle, England

  • David Bishop, UK

    David Bishop, UK

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Denis Blais, Canada

    Denis Blais, Canada

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login