• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • JP

    JP

  • Mike Small, UK

    Mike Small, UK

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Steve

    Steve

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Ann Nicol, USA

    Ann Nicol, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Art Eggert, USA

    Art Eggert, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login