• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Mike Cels, Canada

    Mike Cels, Canada

  • Rob Tison, USA

    Rob Tison, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Philip Brindle, England

    Philip Brindle, England

  • Purningam Jacob, India

    Purningam Jacob, India

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Anita Forte, USA

    Anita Forte, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Jean Waters, UK

    Jean Waters, UK

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • John Dinon, Australia

    John Dinon, Australia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Zabun Nassar, England

    Zabun Nassar, England

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login