• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Daniel Hare, USA

    Daniel Hare, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • David Solomon, UK

    David Solomon, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • John Dinon, Australia

    John Dinon, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Bayley, Australia

    Bayley, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Denis Blais, Canada

    Denis Blais, Canada

  • Jason Goodman, USA

    Jason Goodman, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Rob Tison, USA

    Rob Tison, USA

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Bob Simonds, USA

    Bob Simonds, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login