• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • David Hall, USA

    David Hall, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Hollister

    Hollister
    hollister

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ian Gale, Australia

    Ian Gale, Australia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Alex, Argentina

    Alex, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login