• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • David Hall, USA

    David Hall, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Anita Forte, USA

    Anita Forte, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • David Solomon, UK

    David Solomon, UK

  • Art Eggert, USA

    Art Eggert, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Steve

    Steve

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Susan Keldani, USA

    Susan Keldani, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Timmy, Belgium

    Timmy, Belgium

  • John Sweeney, USA

    John Sweeney, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Mike Small, UK

    Mike Small, UK

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login