• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Susan Anderson, USA

    Susan Anderson, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Philip Brindle, England

    Philip Brindle, England

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Greg Heydet, USA

    Greg Heydet, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Hollister

    Hollister
    hollister

  • Purningam Jacob, India

    Purningam Jacob, India

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mike Small, UK

    Mike Small, UK

  • Susan Keldani, USA

    Susan Keldani, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jay Epstein, USA

    Jay Epstein, USA

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Art Eggert, USA

    Art Eggert, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Alex, Argentina

    Alex, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • JP

    JP

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Dick Dayton, USA

    Dick Dayton, USA

  • Olga, Argentina

    Olga, Argentina

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login