• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Phil Rossall, UK

    Phil Rossall, UK

  • David Solomon, UK

    David Solomon, UK

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Art Eggert, USA

    Art Eggert, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Willi Klein, UK

    Willi Klein, UK

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • John Sweeney, USA

    John Sweeney, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Mike Cels, Canada

    Mike Cels, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Susan Anderson, USA

    Susan Anderson, USA

  • David Hall, USA

    David Hall, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login