• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Bob Simonds, USA

    Bob Simonds, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Mike Cels, Canada

    Mike Cels, Canada

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jean

    Jean
    jean

  • Ann Nicol, USA

    Ann Nicol, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Ali Var, Turkey

    Ali Var, Turkey

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Lee Millard, England

    Lee Millard, England

  • Mark Miller, UK

    Mark Miller, UK

  • Jack Buzby, USA

    Jack Buzby, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Alex, Argentina

    Alex, Argentina

  • Christian Bär, Germany

    Christian Bär, Germany

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Sally Pauls, USA

    Sally Pauls, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login