• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Alex, Argentina

    Alex, Argentina

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Christian Bär, Germany

    Christian Bär, Germany

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Frank Taylor, USA

    Frank Taylor, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Mike Cels, Canada

    Mike Cels, Canada

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Glen Elison, USA

    Glen Elison, USA

  • Rob Tison, USA

    Rob Tison, USA

  • JP

    JP

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Mark Miller, UK

    Mark Miller, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login