• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Susan Keldani, USA

    Susan Keldani, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Lee Millard, England

    Lee Millard, England

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Phil Rossall, UK

    Phil Rossall, UK

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • John Dinon, Australia

    John Dinon, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • David Watson, Scotland

    David Watson, Scotland

  • Philip Brindle, England

    Philip Brindle, England

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Mike Small, UK

    Mike Small, UK

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • JP

    JP

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login