• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jason Goodman, USA

    Jason Goodman, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • David Bishop, UK

    David Bishop, UK

  • John Sweeney, USA

    John Sweeney, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Susan Keldani, USA

    Susan Keldani, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Paul Launer, USA

    Paul Launer, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Philip Brindle, England

    Philip Brindle, England

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Timmy, Belgium

    Timmy, Belgium

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login