• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • JP

    JP

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • David Watson, Scotland

    David Watson, Scotland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Hollister

    Hollister
    hollister

  • Philip Brindle, England

    Philip Brindle, England

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Jean Waters, UK

    Jean Waters, UK

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Bayley, Australia

    Bayley, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login