• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Susan Keldani, USA

    Susan Keldani, USA

  • Hollister

    Hollister
    hollister

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Olga, Argentina

    Olga, Argentina

  • Sally Pauls, USA

    Sally Pauls, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jon Newsome, USA

    Jon Newsome, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Susan Anderson, USA

    Susan Anderson, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Jay Epstein, USA

    Jay Epstein, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Lombana, Spain

    Lombana, Spain

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login