• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Jason Goodman, USA

    Jason Goodman, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Rob Tison, USA

    Rob Tison, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Alex, Argentina

    Alex, Argentina

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Rosie Riley, USA

    Rosie Riley, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Sally Pauls, USA

    Sally Pauls, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • David Watson, Scotland

    David Watson, Scotland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Susan Anderson, USA

    Susan Anderson, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jean Waters, UK

    Jean Waters, UK

  • Greg Heydet, USA

    Greg Heydet, USA

  • David Hall, USA

    David Hall, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Mark Miller, UK

    Mark Miller, UK

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login