• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Bob Simonds, USA

    Bob Simonds, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Michael Lee, Australia

    Michael Lee, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Frank Taylor, USA

    Frank Taylor, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Jean

    Jean
    jean

  • JP

    JP

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Jean Waters, UK

    Jean Waters, UK

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jay Epstein, USA

    Jay Epstein, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Glen Elison, USA

    Glen Elison, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Susan Keldani, USA

    Susan Keldani, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • David Hall, USA

    David Hall, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Phil Rossall, UK

    Phil Rossall, UK

  • Jack Buzby, USA

    Jack Buzby, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • John Sweeney, USA

    John Sweeney, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • David Bishop, UK

    David Bishop, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login