• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Jay Epstein, USA

    Jay Epstein, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • David Solomon, UK

    David Solomon, UK

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Susan Anderson, USA

    Susan Anderson, USA

  • David Bishop, UK

    David Bishop, UK

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Ian Gale, Australia

    Ian Gale, Australia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Anna Barrow, UK

    Anna Barrow, UK

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login