• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Jason Goodman, USA

    Jason Goodman, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Greg Heydet, USA

    Greg Heydet, USA

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • David Bishop, UK

    David Bishop, UK

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Lee Millard, England

    Lee Millard, England

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Jean

    Jean
    jean

  • Anna Barrow, UK

    Anna Barrow, UK

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • JP

    JP

  • Alex, Argentina

    Alex, Argentina

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login