• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • David Watson, Scotland

    David Watson, Scotland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jason Goodman, USA

    Jason Goodman, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • David Hall, USA

    David Hall, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Purningam Jacob, India

    Purningam Jacob, India

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Anita Forte, USA

    Anita Forte, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Rosie Riley, USA

    Rosie Riley, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jean Waters, UK

    Jean Waters, UK

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Frank Taylor, USA

    Frank Taylor, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login