• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Phil Rossall, UK

    Phil Rossall, UK

  • Susan Keldani, USA

    Susan Keldani, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Jon Newsome, USA

    Jon Newsome, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Ali Var, Turkey

    Ali Var, Turkey

  • John Sweeney, USA

    John Sweeney, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Jay Epstein, USA

    Jay Epstein, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jack Buzby, USA

    Jack Buzby, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jean

    Jean
    jean

  • Steve

    Steve

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • John Russo, USA

    John Russo, USA
    final3878

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login