• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Michael Lee, Australia

    Michael Lee, Australia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Olga, Argentina

    Olga, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Mike Small, UK

    Mike Small, UK

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Bayley, Australia

    Bayley, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • John Russo, USA

    John Russo, USA
    final3878

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Phil Rossall, UK

    Phil Rossall, UK

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login