• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Willi Klein, UK

    Willi Klein, UK

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Alex, Argentina

    Alex, Argentina

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Jon Newsome, USA

    Jon Newsome, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Rosie Riley, USA

    Rosie Riley, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Mike Cels, Canada

    Mike Cels, Canada

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Anita Forte, USA

    Anita Forte, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Rob Tison, USA

    Rob Tison, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • David Solomon, UK

    David Solomon, UK

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login