• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Disclaimer

The content of the International Alliance of ALS/MND Associations’ (“the Alliance”) web site is provided for information purposes only. Appropriately qualified and experienced people have reviewed the content to support its accuracy. The Alliance does not accept any liability to any person for the information or advice (or the use of such information or advice) that is provided on this web site or incorporated into it by reference. The information on the Alliance web site is provided on the basis that all persons accessing the site undertake responsibility for assessing the relevance and accuracy of its content for their own purposes.

The Alliance has initiated a policy by which Alliance members can link their sites to the Alliance web site. The Alliance expects that the information contained on the member’s site has been peer reviewed by appropriately qualified and experienced people to support its content and accuracy.

No liability or responsibility is taken by the Alliance for any information or services that may appear on any linked web sites.

Primary Sidebar

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Rob Tison, USA

    Rob Tison, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Mike Small, UK

    Mike Small, UK

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Jean Waters, UK

    Jean Waters, UK

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Art Eggert, USA

    Art Eggert, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Susan Keldani, USA

    Susan Keldani, USA

  • Alex, Argentina

    Alex, Argentina

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Anita Forte, USA

    Anita Forte, USA

  • David Hall, USA

    David Hall, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Philip Brindle, England

    Philip Brindle, England

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login