• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 3 months ago

      Admin

  •  

Primary Sidebar

  • Frank Taylor, USA

    Frank Taylor, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Susan Keldani, USA

    Susan Keldani, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Sally Pauls, USA

    Sally Pauls, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Timmy, Belgium

    Timmy, Belgium

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • David Hall, USA

    David Hall, USA

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Anna Barrow, UK

    Anna Barrow, UK

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Susan Anderson, USA

    Susan Anderson, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • David Bishop, UK

    David Bishop, UK

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Rosie Riley, USA

    Rosie Riley, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login