• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Olga, Argentina

    Olga, Argentina

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • John Russo, USA

    John Russo, USA
    final3878

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Philip Brindle, England

    Philip Brindle, England

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Jay Epstein, USA

    Jay Epstein, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Jean Waters, UK

    Jean Waters, UK

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Christian Bär, Germany

    Christian Bär, Germany

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Dick Dayton, USA

    Dick Dayton, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Alex, Argentina

    Alex, Argentina

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login