• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 5 months ago

      Admin

  •  

Primary Sidebar

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Liam Dwyer, England

    Liam Dwyer, England

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Michael Lee, Australia

    Michael Lee, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Mark Miller, UK

    Mark Miller, UK

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Jay Epstein, USA

    Jay Epstein, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • JP

    JP

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Len Johnrose, England

    Len Johnrose, England

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Ian Gale, Australia

    Ian Gale, Australia

  • John Sweeney, USA

    John Sweeney, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login