• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Jean

    Jean
    jean

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Art Eggert, USA

    Art Eggert, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Jon Newsome, USA

    Jon Newsome, USA

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Lombana, Spain

    Lombana, Spain

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Anna Barrow, UK

    Anna Barrow, UK

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Jason Goodman, USA

    Jason Goodman, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login