• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Dick Dayton, USA

    Dick Dayton, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Ann Nicol, USA

    Ann Nicol, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Hollister

    Hollister
    hollister

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Sally Pauls, USA

    Sally Pauls, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Bob Simonds, USA

    Bob Simonds, USA

  • John Dinon, Australia

    John Dinon, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Lee Millard, England

    Lee Millard, England

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • David Bishop, UK

    David Bishop, UK

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login