• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 3 months ago

      Admin

  •  

Primary Sidebar

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Len Johnrose, England

    Len Johnrose, England

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • David Solomon, UK

    David Solomon, UK

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Jay Epstein, USA

    Jay Epstein, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Steve

    Steve

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ann Nicol, USA

    Ann Nicol, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Paul Launer, USA

    Paul Launer, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Alex, Argentina

    Alex, Argentina

  • Greg Heydet, USA

    Greg Heydet, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Jason Goodman, USA

    Jason Goodman, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login