• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 5 months ago

      Admin

  •  

Primary Sidebar

  • Glen Elison, USA

    Glen Elison, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Anita Forte, USA

    Anita Forte, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Bob Simonds, USA

    Bob Simonds, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Ali Var, Turkey

    Ali Var, Turkey

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Frank Taylor, USA

    Frank Taylor, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Michael Lee, Australia

    Michael Lee, Australia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jean

    Jean
    jean

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Steve

    Steve

  • John Russo, USA

    John Russo, USA
    final3878

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Jean Waters, UK

    Jean Waters, UK

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jon Newsome, USA

    Jon Newsome, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login