• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 7 months ago

      Admin

  •  

Primary Sidebar

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Ian Gale, Australia

    Ian Gale, Australia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Greg Heydet, USA

    Greg Heydet, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Zabun Nassar, England

    Zabun Nassar, England

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • JP

    JP

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Philip Brindle, England

    Philip Brindle, England

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ali Var, Turkey

    Ali Var, Turkey

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Anita Forte, USA

    Anita Forte, USA

  • Olga, Argentina

    Olga, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Willi Klein, UK

    Willi Klein, UK

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login