• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Philip Brindle, England

    Philip Brindle, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Dick Dayton, USA

    Dick Dayton, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Len Johnrose, England

    Len Johnrose, England

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Jean

    Jean
    jean

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • John Russo, USA

    John Russo, USA
    final3878

  • Ali Var, Turkey

    Ali Var, Turkey

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Bayley, Australia

    Bayley, Australia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Purningam Jacob, India

    Purningam Jacob, India

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • David Watson, Scotland

    David Watson, Scotland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login