• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Jack Buzby, USA

    Jack Buzby, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Susan Anderson, USA

    Susan Anderson, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Denis Blais, Canada

    Denis Blais, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Frank Taylor, USA

    Frank Taylor, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Susan Keldani, USA

    Susan Keldani, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Jean

    Jean
    jean

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • John Sweeney, USA

    John Sweeney, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Dick Dayton, USA

    Dick Dayton, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • David Solomon, UK

    David Solomon, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login