• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 7 months ago

      Admin

  •  

Primary Sidebar

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Len Johnrose, England

    Len Johnrose, England

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Mike Small, UK

    Mike Small, UK

  • Bayley, Australia

    Bayley, Australia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Animesh Kumar, India

    Animesh Kumar, India

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Steve

    Steve

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Ali Var, Turkey

    Ali Var, Turkey

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • John Sweeney, USA

    John Sweeney, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Hollister

    Hollister
    hollister

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Seckin McGuirk, England

    Seckin McGuirk, England

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login