• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 4 months ago

      Admin

  •  

Primary Sidebar

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Rob Tison, USA

    Rob Tison, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Olga, Argentina

    Olga, Argentina

  • Steve

    Steve

  • Jean Waters, UK

    Jean Waters, UK

  • Philip Brindle, England

    Philip Brindle, England

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Denis Blais, Canada

    Denis Blais, Canada

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Alex, Argentina

    Alex, Argentina

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Glen Elison, USA

    Glen Elison, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Dick Dayton, USA

    Dick Dayton, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Mark Miller, UK

    Mark Miller, UK

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Hollister

    Hollister
    hollister

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login