• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Denis Blais, Canada

    Denis Blais, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Phil Rossall, UK

    Phil Rossall, UK

  • Jay Epstein, USA

    Jay Epstein, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • David Watson, Scotland

    David Watson, Scotland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • David Hall, USA

    David Hall, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Alex, Argentina

    Alex, Argentina

  • Susan Anderson, USA

    Susan Anderson, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Bob Simonds, USA

    Bob Simonds, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Lee Millard, England

    Lee Millard, England

  • Art Eggert, USA

    Art Eggert, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login