• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 3 months ago

      Admin

  •  

Primary Sidebar

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Willi Klein, UK

    Willi Klein, UK

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Paul Launer, USA

    Paul Launer, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Bob Simonds, USA

    Bob Simonds, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Hollister

    Hollister
    hollister

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Jay Epstein, USA

    Jay Epstein, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Anita Forte, USA

    Anita Forte, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login