• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 4 months ago

      Admin

  •  

Primary Sidebar

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Jean

    Jean
    jean

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Mike Cels, Canada

    Mike Cels, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Sally Pauls, USA

    Sally Pauls, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • David Bishop, UK

    David Bishop, UK

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Steve

    Steve

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Alex, Argentina

    Alex, Argentina

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Anita Forte, USA

    Anita Forte, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Anna Barrow, UK

    Anna Barrow, UK

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Lee Millard, England

    Lee Millard, England

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login