• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 3 months ago

      Admin

  •  

Primary Sidebar

  • Olga, Argentina

    Olga, Argentina

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Lombana, Spain

    Lombana, Spain

  • Jean Waters, UK

    Jean Waters, UK

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Bob Simonds, USA

    Bob Simonds, USA

  • Steve

    Steve

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Frank Taylor, USA

    Frank Taylor, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Glen Elison, USA

    Glen Elison, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Paul Launer, USA

    Paul Launer, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • John Dinon, Australia

    John Dinon, Australia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Len Johnrose, England

    Len Johnrose, England

  • Ian Gale, Australia

    Ian Gale, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login