• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 4 months ago

      Admin

  •  

Primary Sidebar

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Olga, Argentina

    Olga, Argentina

  • Rosie Riley, USA

    Rosie Riley, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Frank Taylor, USA

    Frank Taylor, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Jean Waters, UK

    Jean Waters, UK

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Steve

    Steve

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Ann Nicol, USA

    Ann Nicol, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Hollister

    Hollister
    hollister

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Anita Forte, USA

    Anita Forte, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login