• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 4 months ago

      Admin

  •  

Primary Sidebar

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Ali Var, Turkey

    Ali Var, Turkey

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • JP

    JP

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Sally Pauls, USA

    Sally Pauls, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Christian Bär, Germany

    Christian Bär, Germany

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Jean Waters, UK

    Jean Waters, UK

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Robbie Caliste, UK

    Robbie Caliste, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login