• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 3 months ago

      Admin

  •  

Primary Sidebar

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Mark Miller, UK

    Mark Miller, UK

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Mike Small, UK

    Mike Small, UK

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Len Johnrose, England

    Len Johnrose, England

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Olga, Argentina

    Olga, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • John Russo, USA

    John Russo, USA
    final3878

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • John Sweeney, USA

    John Sweeney, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Ali Var, Turkey

    Ali Var, Turkey

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login