• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Mike Cels, Canada

    Mike Cels, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Lee Millard, England

    Lee Millard, England

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Mark Miller, UK

    Mark Miller, UK

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Frank Taylor, USA

    Frank Taylor, USA

  • Lombana, Spain

    Lombana, Spain

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Rob Tison, USA

    Rob Tison, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Zabun Nassar, England

    Zabun Nassar, England

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • JP

    JP

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Ali Var, Turkey

    Ali Var, Turkey

  • Christian Bär, Germany

    Christian Bär, Germany

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Anna Barrow, UK

    Anna Barrow, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login