• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 4 months ago

      Admin

  •  

Primary Sidebar

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Olga, Argentina

    Olga, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Ian Gale, Australia

    Ian Gale, Australia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Paul Launer, USA

    Paul Launer, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Mark Miller, UK

    Mark Miller, UK

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Jay Epstein, USA

    Jay Epstein, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Animesh Kumar, India

    Animesh Kumar, India

  • Jack Buzby, USA

    Jack Buzby, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • David Bishop, UK

    David Bishop, UK

  • Anita Forte, USA

    Anita Forte, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Philip Brindle, England

    Philip Brindle, England

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login