• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 3 months ago

      Admin

  •  

Primary Sidebar

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Bob Simonds, USA

    Bob Simonds, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Ian Gale, Australia

    Ian Gale, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Art Eggert, USA

    Art Eggert, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Alex, Argentina

    Alex, Argentina

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Glen Elison, USA

    Glen Elison, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login