• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 4 months ago

      Admin

  •  

Primary Sidebar

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Ann Nicol, USA

    Ann Nicol, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Mark Miller, UK

    Mark Miller, UK

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Rosie Riley, USA

    Rosie Riley, USA

  • Bayley, Australia

    Bayley, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Christian Bär, Germany

    Christian Bär, Germany

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Philip Brindle, England

    Philip Brindle, England

  • Susan Anderson, USA

    Susan Anderson, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Sally Pauls, USA

    Sally Pauls, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Olga, Argentina

    Olga, Argentina

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Animesh Kumar, India

    Animesh Kumar, India

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login