• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 3 months ago

      Admin

  •  

Primary Sidebar

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Bayley, Australia

    Bayley, Australia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • David Bishop, UK

    David Bishop, UK

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • David Hall, USA

    David Hall, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Anna Barrow, UK

    Anna Barrow, UK

  • Bob Simonds, USA

    Bob Simonds, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Zabun Nassar, England

    Zabun Nassar, England

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Sally Pauls, USA

    Sally Pauls, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Frank Taylor, USA

    Frank Taylor, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login