• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • Diagnostic Delay (in development)
  • Events/Programs
    • Calendar of Events/Programs
    • Alliance Meeting
    • Allied Professionals Forum
    • Alliance Webinars
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Patient Fellows Program
    • Global CRLI
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Reply To: Newcomer

International Alliance of ALS/MND Associations › Forums › Member Forum › Newcomer › Reply To: Newcomer

September 29, 2016 at 10:06 pm #2167
Gudjon_Iceland
Participant

    Greetings to you as well my dear friends from Turkey and around the world.

    Primary Sidebar

    • Shera Mukherjee, Diagnosed 2013,  Asha Ek Hope Foundation, India

      Shera Mukherjee, Diagnosed 2013, Asha Ek Hope Foundation, India

    • Mike Rannie,  ALS Canada,  Diagnosed 2017

      Mike Rannie, ALS Canada, Diagnosed 2017

    • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

      Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

      Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    • Daniel Hare

      Daniel Hare

    • Duncan Bayly , MND Australia

      Duncan Bayly , MND Australia

    • Jon Newsome, USA

      Jon Newsome, USA

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    • Horacio Fritzer, Argentina

      Horacio Fritzer, Argentina

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Zabun Nassar, MND Association, Diagnosed 2016, England

      Zabun Nassar, MND Association, Diagnosed 2016, England

    • Valdomiro Xavier Honório, Brazil

      Valdomiro Xavier Honório, Brazil

    • Colm Francis Davis, Ireland

      Colm Francis Davis, Ireland

    • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

      Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

    • Ali Var, Turkey

      Ali Var, Turkey

    • Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

      Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

    • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

      Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

    • Claudia Cominetti, Associazione conSLAncio Onlus,  Italy

      Claudia Cominetti, Associazione conSLAncio Onlus, Italy

    • Mark Miller

      Mark Miller

    • Cath Muir

      Cath Muir
      Cath

    • Natalya Rybakova, Russian Charity ALS Foundation

      Natalya Rybakova, Russian Charity ALS Foundation

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

      Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    • Amparo Muriel Engativa, Colombia

      Amparo Muriel Engativa, Colombia

    • Peng Yi-Wen

      Peng Yi-Wen

    • Armando González Gómez, ACELA, Colombia

      Armando González Gómez, ACELA, Colombia

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • March of Faces Photo Submission_ALEX_ELA ARGENTINA

      March of Faces Photo Submission_ALEX_ELA ARGENTINA

    • Phil Rossall, MND-Association, UK

      Phil Rossall, MND-Association, UK

    • Andrea Zicchieri, Associazione conSLAncio Onlus, Italy

      Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
      AndreaZicchieri_conSLAncioItaly

    • Steven Gallagher, Canada

      Steven Gallagher, Canada

    • England-Lee-Millard, UK

      England-Lee-Millard, UK

    • Maurice Leclerc, Canada

      Maurice Leclerc, Canada

    • Bayley, Australia

      Bayley, Australia

    • Michael Lee, Australia

      Michael Lee, Australia

    • Christian Bär, Germany

      Christian Bär, Germany

    • Mauril Belanger

      Mauril Belanger

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

      Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

      Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    • Frank "Papa" Taylor, USA

      Frank “Papa” Taylor, USA

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • Ian Gale, MND Australia

      Ian Gale, MND Australia

    • Dick Dayton, USA

      Dick Dayton, USA

    • Ian Roberts

      Ian Roberts

    • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

      Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

    • Ismail Gokcek, Turkey

      Ismail Gokcek, Turkey
      ismail_gokcek_alsmnd_tr

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2025 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login