• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Academy
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 8 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 6 years, 1 month ago by International Alliance.
      • This topic was modified 6 years, 1 month ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • Zelina Brito, Diagnosed 2018, Brazil

      Zelina Brito, Diagnosed 2018, Brazil

    • Claudia Gotti, Brazil

      Claudia Gotti, Brazil

    • Peng Yi-Wen

      Peng Yi-Wen

    • Jon Newsome, USA

      Jon Newsome, USA

    • Lombana, Spain

      Lombana, Spain

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • Jean

      Jean
      jean

    • Anita Forte, Les Turner ALS Foundation, USA

      Anita Forte, Les Turner ALS Foundation, USA

    • Claudette Sturk, ALS Society of Canada

      Claudette Sturk, ALS Society of Canada
      Picture2

    • Ian Gale, MND Australia

      Ian Gale, MND Australia

    • Jo Knowlton and her dog, Scotland

      Jo Knowlton and her dog, Scotland

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

      Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    • Denis Blais, Diagnosed 2015 , ALS Canada

      Denis Blais, Diagnosed 2015 , ALS Canada

    • John Dinon, MND Australia

      John Dinon, MND Australia

    • Lachlan Terry,  MND Australia,  Diagnosed 2015

      Lachlan Terry, MND Australia, Diagnosed 2015

    • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

      Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    • Willi Klein

      Willi Klein

    • Dick Dayton, USA

      Dick Dayton, USA

    • Roxana Canova, Diagnosed 2012 ,  Asociación ELA Argentina

      Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

    • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

      Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

      David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    • Frank "Papa" Taylor, USA

      Frank “Papa” Taylor, USA

    • Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

      Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

    • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

      Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    • Brian Parsons

      Brian Parsons

    • Christian Bär, Germany

      Christian Bär, Germany

    • March of Faces Photo Submission_OLGA_ELA ARGENTINA

      March of Faces Photo Submission_OLGA_ELA ARGENTINA

    • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

      Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

      Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

    • Ali Var, Turkey

      Ali Var, Turkey

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Imelda Arenas, ACELA, Colombia

      Imelda Arenas, ACELA, Colombia

    • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

      Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

    • Joy Blakeley, Diagnosed 2017 , MND Australia

      Joy Blakeley, Diagnosed 2017 , MND Australia

    • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

      H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    • March of Faces Photo Submission_ALEX_ELA ARGENTINA

      March of Faces Photo Submission_ALEX_ELA ARGENTINA

    • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

      Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

      Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    • Philip Brindle,  MND Association,  Diagnosed 2015,  England

      Philip Brindle, MND Association, Diagnosed 2015, England

    • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

      Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    • Kris Van Reusel, Belgium

      Kris Van Reusel, Belgium

    • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

      Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    • Alan Liz Ogg 29042016 000799 lo res

      Alan Liz Ogg 29042016 000799 lo res

    • Malcolm Buck, Australia

      Malcolm Buck, Australia

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

      João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login