• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 10 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 6 years, 3 months ago by International Alliance.
      • This topic was modified 6 years, 3 months ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • Tammy Moore and Eddy Lefrancois

      Tammy Moore and Eddy Lefrancois

    • Alberto Baez Murillo, Colombia

      Alberto Baez Murillo, Colombia

    • Jean

      Jean
      jean

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

      Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • Shera Mukherjee, Diagnosed 2013,  Asha Ek Hope Foundation, India

      Shera Mukherjee, Diagnosed 2013, Asha Ek Hope Foundation, India

    • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

      Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

    • Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

      Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

    • Brian Lovell, Diagnosed 2011 . MND Australia

      Brian Lovell, Diagnosed 2011 . MND Australia

    • Jan Zuring, Diagnosed 2010 , The Netherlands

      Jan Zuring, Diagnosed 2010 , The Netherlands

    • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

      Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

    • Lombana, Spain

      Lombana, Spain

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    • IMG_1211

      IMG_1211

    • Paul Launer, USA

      Paul Launer, USA

    • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

      Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    • Carlos Alberto Arango, Colombia

      Carlos Alberto Arango, Colombia

    • Jack Buzby, USA

      Jack Buzby, USA

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Steven Spencer, Diagnosed 2014 , MND New Zealand

      Steven Spencer, Diagnosed 2014 , MND New Zealand

    • Roy

      Roy
      roy

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Natalya Rybakova, Russia

      Natalya Rybakova, Russia

    • Zabun Nassar, MND Association, Diagnosed 2016, England

      Zabun Nassar, MND Association, Diagnosed 2016, England

    • Dad

      Dad

    • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

      Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

    • Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

      Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

      Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    • Jose Espinosa, Argentina

      Jose Espinosa, Argentina

    • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

      Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

    • Ali Var, Turkey

      Ali Var, Turkey

    • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Jorge Melo, ABrELA, Brazil

      Jorge Melo, ABrELA, Brazil

    • John and Loretta Russo, USA

      John and Loretta Russo, USA
      final3878

    • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

      Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

      H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    • Dr Shelly Hoover

      Dr Shelly Hoover

    • IMG_2658

      IMG_2658

    • Andrietta

      Andrietta

    • Cath Muir

      Cath Muir
      Cath

    • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

    • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

      Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

      Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

      Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    • Claire Garry, USA

      Claire Garry, USA
      20200117_214643

    Learn more about the March of Faces

    Footer

    Subscribe to our Bi-monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login