• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Academy
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 8 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 6 years, 1 month ago by International Alliance.
      • This topic was modified 6 years, 1 month ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • Liam Dwyer, England

      Liam Dwyer, England

    • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

      Conny van der Meijden, Diagnosed 2001, ALS Netherlands

    • Hanne Stenmose, Muskelsvindfonden, Denmark

      Hanne Stenmose, Muskelsvindfonden, Denmark

    • Chun Ju Xiao, China

      Chun Ju Xiao, China

    • Mark Miller

      Mark Miller

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Den Haag, Diagnosed 2016 , The Netherlands

      Den Haag, Diagnosed 2016 , The Netherlands

    • IMG_2658

      IMG_2658

    • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

      Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • Irene McCaughey, Diagnosed 2011,  MND Australia

      Irene McCaughey, Diagnosed 2011, MND Australia

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    • Mike Small, Motor Neurone Disease (MND) Association, UK

      Mike Small, Motor Neurone Disease (MND) Association, UK

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Ian Roberts

      Ian Roberts

    • Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

      Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

    • Mary Thomas, Diagnosed 2013 , MND Australia

      Mary Thomas, Diagnosed 2013 , MND Australia

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Cath Muir

      Cath Muir
      Cath

    • Steve Lufkin, USA

      Steve Lufkin, USA
      IMG_3993

    • Carlos Alberto Arango, Colombia

      Carlos Alberto Arango, Colombia

    • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

      Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

      Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    • Bayley, Australia

      Bayley, Australia

    • Michael Lee, Australia

      Michael Lee, Australia

    • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

      Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Wilfried Leusing

      Wilfried Leusing

    • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

      Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Zabun Nassar, MND Association, Diagnosed 2016, England

      Zabun Nassar, MND Association, Diagnosed 2016, England

    • Oliver Juenke, DGM, Germany

      Oliver Juenke, DGM, Germany

    • Frank "Papa" Taylor, USA

      Frank “Papa” Taylor, USA

    • Jan Zuring, Diagnosed 2010 , The Netherlands

      Jan Zuring, Diagnosed 2010 , The Netherlands

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Liam Dwyer, England

      Liam Dwyer, England

    • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

      Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

    • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

      Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

    • England-Lee-Millard, UK

      England-Lee-Millard, UK

    • Ann Nicol

      Ann Nicol

    • Jorge Melo, ABrELA, Brazil

      Jorge Melo, ABrELA, Brazil

    • Susan Keldani, Les Turner ALS Foundation, USA

      Susan Keldani, Les Turner ALS Foundation, USA

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

      Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login