• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • Diagnostic Delay (in development)
  • Events/Programs
    • Calendar of Events/Programs
    • Alliance Meeting
    • Allied Professionals Forum
    • Alliance Webinars
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Patient Fellows Program
    • Global CRLI
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 5 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 5 years, 10 months ago by International Alliance.
      • This topic was modified 5 years, 9 months ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • Bjarne Hytjanstorp, ALS Norge, Norway

      Bjarne Hytjanstorp, ALS Norge, Norway

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

      Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

    • Natalya Rybakova, Russian Charity ALS Foundation

      Natalya Rybakova, Russian Charity ALS Foundation

    • Bayley, Australia

      Bayley, Australia

    • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

    • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

      Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

    • Colm Francis Davis, Ireland

      Colm Francis Davis, Ireland

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

      Conny van der Meijden, Diagnosed 2001, ALS Netherlands

    • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

    • Len Johnrose,  MND Association,  Diagnosed 2017,  England

      Len Johnrose, MND Association, Diagnosed 2017, England

    • Willi Klein

      Willi Klein

    • Anita Forte, Les Turner ALS Foundation, USA

      Anita Forte, Les Turner ALS Foundation, USA

    • Maurice Leclerc, Canada

      Maurice Leclerc, Canada

    • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

      Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

    • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

      Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Leon Ryba, Argentina

      Leon Ryba, Argentina

    • Dr Shelly Hoover

      Dr Shelly Hoover

    • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

      David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • Ian Roberts

      Ian Roberts

    • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

      Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    • Guido De Mets, Belgium

      Guido De Mets, Belgium

    • Mauril Belanger

      Mauril Belanger

    • Mark Miller

      Mark Miller

    • Roy

      Roy
      roy

    • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

      Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

      Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    • Armando González Gómez, ACELA, Colombia

      Armando González Gómez, ACELA, Colombia

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • Brian Parsons

      Brian Parsons

    • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

      Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    • Chih Ching Darren Wong, MND Malaysia

      Chih Ching Darren Wong, MND Malaysia

    • Andrea Zicchieri, Associazione conSLAncio Onlus, Italy

      Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
      AndreaZicchieri_conSLAncioItaly

    • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

      Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

    • Shay Rishoni

      Shay Rishoni

    • JP

      JP

    • Christian Bär, Germany

      Christian Bär, Germany

    • Jan Zuring, Diagnosed 2010 , The Netherlands

      Jan Zuring, Diagnosed 2010 , The Netherlands

    • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

      Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

      Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

    • Bob Simonds and Drew O'Neil, USA

      Bob Simonds and Drew O’Neil, USA

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login