• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Academy
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 8 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 6 years, 1 month ago by International Alliance.
      • This topic was modified 6 years, 1 month ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • Denis Blais, Diagnosed 2015 , ALS Canada

      Denis Blais, Diagnosed 2015 , ALS Canada

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    • David Watson,  MND Scotland,  Diagnosed 2018

      David Watson, MND Scotland, Diagnosed 2018

    • Oliver Juenke, Germany

      Oliver Juenke, Germany

    • Wilfried Leusing

      Wilfried Leusing

    • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

      Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

    • Lachlan Terry,  MND Australia,  Diagnosed 2015

      Lachlan Terry, MND Australia, Diagnosed 2015

    • João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

      João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

    • Mary Thomas, Diagnosed 2013 , MND Australia

      Mary Thomas, Diagnosed 2013 , MND Australia

    • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Brian Lovell, Diagnosed 2011 . MND Australia

      Brian Lovell, Diagnosed 2011 . MND Australia

    • Frank "Papa" Taylor, USA

      Frank “Papa” Taylor, USA

    • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

      Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

    • Maurice Leclerc, Canada

      Maurice Leclerc, Canada

    • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

      Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

      Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    • Andrea Zicchieri, Associazione conSLAncio Onlus, Italy

      Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
      AndreaZicchieri_conSLAncioItaly

    • 727747090571358167

      727747090571358167

    • Imelda Arenas, ACELA, Colombia

      Imelda Arenas, ACELA, Colombia

    • Wendy Hendrickson, ALS Hope Foundation, USA

      Wendy Hendrickson, ALS Hope Foundation, USA

    • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

      Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

    • Rosie Riley, Les Turner ALS Foundation, USA

      Rosie Riley, Les Turner ALS Foundation, USA

    • Irene McCaughey, Diagnosed 2011,  MND Australia

      Irene McCaughey, Diagnosed 2011, MND Australia

    • Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

      Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

    • Leon Ryba, Argentina

      Leon Ryba, Argentina

    • Steven Spencer, Diagnosed 2014 , MND New Zealand

      Steven Spencer, Diagnosed 2014 , MND New Zealand

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Nicholas (Nic) Bowman, MND Association of South Africa,  Diagnosed 2016,  Australia

      Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

    • Mike Small, Motor Neurone Disease (MND) Association, UK

      Mike Small, Motor Neurone Disease (MND) Association, UK

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

      Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Valdomiro Xavier Honório, Brazil

      Valdomiro Xavier Honório, Brazil

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • Chih Ching Darren Wong, MND Malaysia

      Chih Ching Darren Wong, MND Malaysia

    • Christian Bär, Germany

      Christian Bär, Germany

    • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

      Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    • Inta Grubb, Diagnosed 2014,  MND Australia

      Inta Grubb, Diagnosed 2014, MND Australia

    • Brian Parsons

      Brian Parsons

    • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

      Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

    • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

      Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    • Juvenal Bayona Romero

      Juvenal Bayona Romero

    • Mahmood Anwar, UK

      Mahmood Anwar, UK

    • Bob Simonds and Drew O'Neil, USA

      Bob Simonds and Drew O’Neil, USA

    • Guido De Mets, Belgium

      Guido De Mets, Belgium

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login