• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 10 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 6 years, 3 months ago by International Alliance.
      • This topic was modified 6 years, 3 months ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • David Watson,  MND Scotland,  Diagnosed 2018

      David Watson, MND Scotland, Diagnosed 2018

    • Philip Brindle,  MND Association,  Diagnosed 2015,  England

      Philip Brindle, MND Association, Diagnosed 2015, England

    • Brian Parsons

      Brian Parsons

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

    • Daniel Hare

      Daniel Hare

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

      Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

      Conny van der Meijden, Diagnosed 2001, ALS Netherlands

    • Mark Miller

      Mark Miller

    • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

      Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    • Jack Buzby, USA

      Jack Buzby, USA

    • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

      Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

    • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

      Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    • Amparo Muriel Engativa, Colombia

      Amparo Muriel Engativa, Colombia

    • Eric Von Schaumburg, USA

      Eric Von Schaumburg, USA

    • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    • Jo Knowlton and her dog, Scotland

      Jo Knowlton and her dog, Scotland

    • Chun Ju Xiao, China

      Chun Ju Xiao, China

    • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

      Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

      Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Steven Gallagher, Canada

      Steven Gallagher, Canada

    • Leon Ryba, Asociación ELA Argentina

      Leon Ryba, Asociación ELA Argentina

    • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

      Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

    • Anita Forte, Les Turner ALS Foundation, USA

      Anita Forte, Les Turner ALS Foundation, USA

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    • Andrietta

      Andrietta

    • David Bishop

      David Bishop

    • Steven Spencer, Diagnosed 2014 , MND New Zealand

      Steven Spencer, Diagnosed 2014 , MND New Zealand

    • Mary Thomas, Diagnosed 2013 , MND Australia

      Mary Thomas, Diagnosed 2013 , MND Australia

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    • Steve Lufkin, USA

      Steve Lufkin, USA
      IMG_3993

    • Jose Espinosa, Argentina

      Jose Espinosa, Argentina

    • Mauril Belanger

      Mauril Belanger

    • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

      Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    • Dad

      Dad

    • JP

      JP

    • Len Johnrose,  MND Association,  Diagnosed 2017,  England

      Len Johnrose, MND Association, Diagnosed 2017, England

    • Mauril Bélanger, Diagnosed 2015 , ALS Canada

      Mauril Bélanger, Diagnosed 2015 , ALS Canada

    • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

      H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    • Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

      Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

    • Enzo Maccarrone, AISLA ONLUS, Italy

      Enzo Maccarrone, AISLA ONLUS, Italy

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • IMG_2658

      IMG_2658

    • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

      Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    • Art Eggert, USA

      Art Eggert, USA

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login