• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Academy
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 8 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 6 years, 1 month ago by International Alliance.
      • This topic was modified 6 years, 1 month ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

      Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Carlos Alberto Báez Murillo, ACELA, Colombia

      Carlos Alberto Báez Murillo, ACELA, Colombia

    • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

      Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

    • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

      Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Jon Newsome, Les Turner ALS Foundation, USA

      Jon Newsome, Les Turner ALS Foundation, USA

    • Imelda Arenas, ACELA, Colombia

      Imelda Arenas, ACELA, Colombia

    • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

      Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    • Ian Gale, MND Australia

      Ian Gale, MND Australia

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    • Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

      Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

      Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    • Duncan Bayly , MND Australia

      Duncan Bayly , MND Australia

    • England-Lee-Millard, UK

      England-Lee-Millard, UK

    • March of Faces Photo Submission_ALEX_ELA ARGENTINA

      March of Faces Photo Submission_ALEX_ELA ARGENTINA

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

      Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    • Lachlan Terry,  MND Australia,  Diagnosed 2015

      Lachlan Terry, MND Australia, Diagnosed 2015

    • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

      Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

    • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

      Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

    • Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

      Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

    • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

      Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    • Art Eggert, USA

      Art Eggert, USA

    • Steve Lufkin, USA

      Steve Lufkin, USA
      IMG_3993

    • Peng Yi-Wen

      Peng Yi-Wen

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

      Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

    • Jorge Melo, ABrELA, Brazil

      Jorge Melo, ABrELA, Brazil

    • Cath Muir

      Cath Muir
      Cath

    • Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

      Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

    • Roy

      Roy
      roy

    • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

      Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

      Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

      Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    • Shera Mukherjee, Diagnosed 2013,  Asha Ek Hope Foundation, India

      Shera Mukherjee, Diagnosed 2013, Asha Ek Hope Foundation, India

    • Liam Dwyer, England

      Liam Dwyer, England

    • Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

      Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Jo Knowlton and her dog, Scotland

      Jo Knowlton and her dog, Scotland

    • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

      Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

    • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

      Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    • Ann Nicol

      Ann Nicol

    • Den Haag, Diagnosed 2016 , The Netherlands

      Den Haag, Diagnosed 2016 , The Netherlands

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login