• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • Diagnostic Delay (in development)
  • Events/Programs
    • Calendar of Events/Programs
    • Alliance Meeting
    • Allied Professionals Forum
    • Alliance Webinars
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Patient Fellows Program
    • Global CRLI
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 5 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 5 years, 10 months ago by International Alliance.
      • This topic was modified 5 years, 10 months ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

      João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    • Brian Lovell, Diagnosed 2011 . MND Australia

      Brian Lovell, Diagnosed 2011 . MND Australia

    • Oliver Juenke, DGM, Germany

      Oliver Juenke, DGM, Germany

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

      Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • Zelina Brito, Diagnosed 2018, Brazil

      Zelina Brito, Diagnosed 2018, Brazil

    • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

      Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

    • Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

      Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

    • Claire Garry, USA

      Claire Garry, USA
      20200117_214643

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • IMG_1211

      IMG_1211

    • Enzo Maccarrone, AISLA ONLUS, Italy

      Enzo Maccarrone, AISLA ONLUS, Italy

    • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

      Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    • Juvenal Bayona Romero

      Juvenal Bayona Romero

    • Philip Brindle,  MND Association,  Diagnosed 2015,  England

      Philip Brindle, MND Association, Diagnosed 2015, England

    • Kris Van Reusel, Belgium

      Kris Van Reusel, Belgium

    • Irene McCaughey, Diagnosed 2011,  MND Australia

      Irene McCaughey, Diagnosed 2011, MND Australia

    • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

      Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    • Steven Spencer, Diagnosed 2014 , MND New Zealand

      Steven Spencer, Diagnosed 2014 , MND New Zealand

    • Natalya Rybakova, Russian Charity ALS Foundation

      Natalya Rybakova, Russian Charity ALS Foundation

    • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

      Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

    • Shay Rishoni

      Shay Rishoni

    • Steve Lufkin, USA

      Steve Lufkin, USA
      IMG_3993

    • Paul Launer, USA

      Paul Launer, USA

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

      Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

    • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

      David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    • Greg Heydet, ALS Hope Foundation, USA

      Greg Heydet, ALS Hope Foundation, USA

    • Hanne Stenmose, Muskelsvindfonden, Denmark

      Hanne Stenmose, Muskelsvindfonden, Denmark

    • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

      Wilfried Leusing, Diagnosed 2010 , DGM, Germany

    • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

      Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

    • Dad

      Dad

    • JP

      JP

    • Willi Klein

      Willi Klein

    • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

    • Horacio Fritzer, Argentina

      Horacio Fritzer, Argentina

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • Richard Clark, MND New Zealand,  Diagnosed 2011

      Richard Clark, MND New Zealand, Diagnosed 2011

    • Art Eggert, USA

      Art Eggert, USA

    • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

      Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

      Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    • March of Faces Photo Submission_OLGA_ELA ARGENTINA

      March of Faces Photo Submission_OLGA_ELA ARGENTINA

    • Carlos Alberto Arango, Colombia

      Carlos Alberto Arango, Colombia

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login