• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • Diagnostic Delay (in development)
  • Events/Programs
    • Calendar of Events/Programs
    • Alliance Meeting
    • Allied Professionals Forum
    • Alliance Webinars
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Patient Fellows Program
    • Global CRLI
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Forum Guidelines

International Alliance of ALS/MND Associations › Forums › Member Forum › Forum Guidelines

  • This topic has 0 replies, 1 voice, and was last updated 9 years, 4 months ago by Admin.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • August 15, 2016 at 9:48 am #2059
    Admin
    Keymaster

      While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy (alliance@als-mnd.org) if anyone is misusing the forum. We hope this is a wonderful resource for all of our members.

      • This topic was modified 5 years, 9 months ago by International Alliance.
      • This topic was modified 5 years, 9 months ago by Admin.
    • Author
      Posts
    Viewing 1 post (of 1 total)
    • You must be logged in to reply to this topic.
    Log In

    Primary Sidebar

    • Valdomiro Xavier Honório, Brazil

      Valdomiro Xavier Honório, Brazil

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

      Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    • Carlos Alberto Báez Murillo, ACELA, Colombia

      Carlos Alberto Báez Murillo, ACELA, Colombia

    • JP

      JP

    • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

      Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • IMG_2658

      IMG_2658

    • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

      Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

      Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    • Ali Var, Turkey

      Ali Var, Turkey

    • Mark Miller

      Mark Miller

    • Leon Ryba, Asociación ELA Argentina

      Leon Ryba, Asociación ELA Argentina

    • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

      Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

      Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

    • Brian Lovell, Diagnosed 2011 . MND Australia

      Brian Lovell, Diagnosed 2011 . MND Australia

    • Ian Roberts

      Ian Roberts

    • Susan Keldani, Les Turner ALS Foundation, USA

      Susan Keldani, Les Turner ALS Foundation, USA

    • Ann Nicol

      Ann Nicol

    • Jack Buzby, USA

      Jack Buzby, USA

    • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

      Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

      Conny van der Meijden, Diagnosed 2001, ALS Netherlands

    • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

      Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

    • Mike Rannie,  ALS Canada,  Diagnosed 2017

      Mike Rannie, ALS Canada, Diagnosed 2017

    • Chris McCauley, Diagnosed 2015 , ALS Canada

      Chris McCauley, Diagnosed 2015 , ALS Canada

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Bob Simonds and Drew O'Neil, USA

      Bob Simonds and Drew O’Neil, USA

    • Rosie Riley, Les Turner ALS Foundation, USA

      Rosie Riley, Les Turner ALS Foundation, USA

    • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    • Malcolm Buck, Australia

      Malcolm Buck, Australia

    • Joy Blakeley, Diagnosed 2017 , MND Australia

      Joy Blakeley, Diagnosed 2017 , MND Australia

    • England-Lee-Millard, UK

      England-Lee-Millard, UK

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Oliver Juenke, DGM, Germany

      Oliver Juenke, DGM, Germany

    • Tammy Moore and Eddy Lefrancois

      Tammy Moore and Eddy Lefrancois

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

      Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

    • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    • Steve

      Steve

    • Irene McCaughey, Diagnosed 2011,  MND Australia

      Irene McCaughey, Diagnosed 2011, MND Australia

    • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

      Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Claudia Gotti, Brazil

      Claudia Gotti, Brazil

    • Andrietta

      Andrietta

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

      Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    • Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

      Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

    • Bjarne Hytjanstorp, ALS Norge, Norway

      Bjarne Hytjanstorp, ALS Norge, Norway

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2025 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login