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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Rob Tison, USA

    Rob Tison, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Ann Nicol, USA

    Ann Nicol, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • David Solomon, UK

    David Solomon, UK

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Alex, Argentina

    Alex, Argentina

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Willi Klein, UK

    Willi Klein, UK

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • David Hall, USA

    David Hall, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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