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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • History
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • David Watson, Scotland

    David Watson, Scotland

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Michael Lee, Australia

    Michael Lee, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • David Hall, USA

    David Hall, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Bayley, Australia

    Bayley, Australia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Rob Tison, USA

    Rob Tison, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Bob Simonds, USA

    Bob Simonds, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Paul Launer, USA

    Paul Launer, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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