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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • David Bishop, UK

    David Bishop, UK

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • David Solomon, UK

    David Solomon, UK

  • John Dinon, Australia

    John Dinon, Australia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Bayley, Australia

    Bayley, Australia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Purningam Jacob, India

    Purningam Jacob, India

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Ali Var, Turkey

    Ali Var, Turkey

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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