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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Len Johnrose, England

    Len Johnrose, England

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Bayley, Australia

    Bayley, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Lee Millard, England

    Lee Millard, England

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ian Gale, Australia

    Ian Gale, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Mark Miller, UK

    Mark Miller, UK

  • Christian Bär, Germany

    Christian Bär, Germany

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Frank Taylor, USA

    Frank Taylor, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Mike Cels, Canada

    Mike Cels, Canada

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Shera Mukherjee, India

    Shera Mukherjee, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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