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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Frank Taylor, USA

    Frank Taylor, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Steve

    Steve

  • Len Johnrose, England

    Len Johnrose, England

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • John Dinon, Australia

    John Dinon, Australia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Ann Nicol, USA

    Ann Nicol, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Lombana, Spain

    Lombana, Spain

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • David Hall, USA

    David Hall, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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