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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Anna Barrow, UK

    Anna Barrow, UK

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jack Buzby, USA

    Jack Buzby, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Timmy, Belgium

    Timmy, Belgium

  • Paul Launer, USA

    Paul Launer, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Zabun Nassar, England

    Zabun Nassar, England

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Mark Miller, UK

    Mark Miller, UK

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jean

    Jean
    jean

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Steve

    Steve

  • Phil Rossall, UK

    Phil Rossall, UK

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • David Hall, USA

    David Hall, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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