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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Olga, Argentina

    Olga, Argentina

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Frank Taylor, USA

    Frank Taylor, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Rosie Riley, USA

    Rosie Riley, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Animesh Kumar, India

    Animesh Kumar, India

  • Lombana, Spain

    Lombana, Spain

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Purningam Jacob, India

    Purningam Jacob, India

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Ali Var, Turkey

    Ali Var, Turkey

  • David Bishop, UK

    David Bishop, UK

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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