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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Ian Gale, Australia

    Ian Gale, Australia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Olga, Argentina

    Olga, Argentina

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Jean

    Jean
    jean

  • David Solomon, UK

    David Solomon, UK

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Jack Buzby, USA

    Jack Buzby, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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