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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 7 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Paul Launer, USA

    Paul Launer, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • John Sweeney, USA

    John Sweeney, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Zabun Nassar, England

    Zabun Nassar, England

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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