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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

View Calendar

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Lombana, Spain

    Lombana, Spain

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Jack Buzby, USA

    Jack Buzby, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • JP

    JP

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Sally Pauls, USA

    Sally Pauls, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Jean

    Jean
    jean

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • David Solomon, UK

    David Solomon, UK

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Jason Goodman, USA

    Jason Goodman, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Glen Elison, USA

    Glen Elison, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • David Bishop, UK

    David Bishop, UK

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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