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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Mike Small, UK

    Mike Small, UK

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Willi Klein, UK

    Willi Klein, UK

  • David Bishop, UK

    David Bishop, UK

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Philip Brindle, England

    Philip Brindle, England

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • David Watson, Scotland

    David Watson, Scotland

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • John Sweeney, USA

    John Sweeney, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Denis Blais, Canada

    Denis Blais, Canada

  • Paul Launer, USA

    Paul Launer, USA

  • Jason Goodman, USA

    Jason Goodman, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Steve

    Steve

  • Lombana, Spain

    Lombana, Spain

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Glen Elison, USA

    Glen Elison, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Jean

    Jean
    jean

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Hollister

    Hollister
    hollister

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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