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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Zabun Nassar, England

    Zabun Nassar, England

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Mike Cels, Canada

    Mike Cels, Canada

  • Michael Lee, Australia

    Michael Lee, Australia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • John Russo, USA

    John Russo, USA
    final3878

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Bayley, Australia

    Bayley, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • David Watson, Scotland

    David Watson, Scotland

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Ian Gale, Australia

    Ian Gale, Australia

  • Lombana, Spain

    Lombana, Spain

  • Lee Millard, England

    Lee Millard, England

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Len Johnrose, England

    Len Johnrose, England

  • Mike Small, UK

    Mike Small, UK

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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