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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • David Bishop, UK

    David Bishop, UK

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Olga, Argentina

    Olga, Argentina

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Len Johnrose, England

    Len Johnrose, England

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Timmy, Belgium

    Timmy, Belgium

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • JP

    JP

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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