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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Philip Brindle, England

    Philip Brindle, England

  • Daniel Hare, USA

    Daniel Hare, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ian Gale, Australia

    Ian Gale, Australia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Bayley, Australia

    Bayley, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Jay Epstein, USA

    Jay Epstein, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Ali Var, Turkey

    Ali Var, Turkey

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Christian Bär, Germany

    Christian Bär, Germany

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Jean Waters, UK

    Jean Waters, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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