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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Anna Barrow, UK

    Anna Barrow, UK

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Bob Simonds, USA

    Bob Simonds, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Zabun Nassar, England

    Zabun Nassar, England

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Rosie Riley, USA

    Rosie Riley, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Jon Newsome, USA

    Jon Newsome, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • David Watson, Scotland

    David Watson, Scotland

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Ann Nicol, USA

    Ann Nicol, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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