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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Ali Var, Turkey

    Ali Var, Turkey

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Susan Keldani, USA

    Susan Keldani, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • David Solomon, UK

    David Solomon, UK

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Ann Nicol, USA

    Ann Nicol, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Zabun Nassar, England

    Zabun Nassar, England

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Dick Dayton, USA

    Dick Dayton, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Bayley, Australia

    Bayley, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Philip Brindle, England

    Philip Brindle, England

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Cath Muir, UK

    Cath Muir, UK
    Cath

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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