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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Lee Millard, England

    Lee Millard, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Daniel Hare, USA

    Daniel Hare, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Jason Goodman, USA

    Jason Goodman, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jean Waters, UK

    Jean Waters, UK

  • David Bishop, UK

    David Bishop, UK

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jay Epstein, USA

    Jay Epstein, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Sally Pauls, USA

    Sally Pauls, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Susan Keldani, USA

    Susan Keldani, USA

  • John Dinon, Australia

    John Dinon, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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