• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

@rachel

Profile

Registered: 12 years, 7 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Philip Brindle, England

    Philip Brindle, England

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Christian Bär, Germany

    Christian Bär, Germany

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Mike Cels, Canada

    Mike Cels, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Timmy, Belgium

    Timmy, Belgium

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • John Dinon, Australia

    John Dinon, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Steve

    Steve

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Lee Millard, England

    Lee Millard, England

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login