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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Mark Miller, UK

    Mark Miller, UK

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Ann Nicol, USA

    Ann Nicol, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Jack Buzby, USA

    Jack Buzby, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Lombana, Spain

    Lombana, Spain

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Philip Brindle, England

    Philip Brindle, England

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • John Dinon, Australia

    John Dinon, Australia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Alex, Argentina

    Alex, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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