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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Ann Nicol, USA

    Ann Nicol, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jack Buzby, USA

    Jack Buzby, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Steve

    Steve

  • Michael Lee, Australia

    Michael Lee, Australia

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Phil Rossall, UK

    Phil Rossall, UK

  • Greg Heydet, USA

    Greg Heydet, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Timmy, Belgium

    Timmy, Belgium

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • John Russo, USA

    John Russo, USA
    final3878

  • Rob Tison, USA

    Rob Tison, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Rosie Riley, USA

    Rosie Riley, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Mike Small, UK

    Mike Small, UK

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Art Eggert, USA

    Art Eggert, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Bayley, Australia

    Bayley, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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