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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jack Buzby, USA

    Jack Buzby, USA

  • David Bishop, UK

    David Bishop, UK

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Michael Lee, Australia

    Michael Lee, Australia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Greg Heydet, USA

    Greg Heydet, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Willi Klein, UK

    Willi Klein, UK

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • John Sweeney, USA

    John Sweeney, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Ian Gale, Australia

    Ian Gale, Australia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Liam Dwyer, England

    Liam Dwyer, England

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Mike Cels, Canada

    Mike Cels, Canada

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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