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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Staff
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Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Rosie Riley, USA

    Rosie Riley, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Olga, Argentina

    Olga, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Jay Epstein, USA

    Jay Epstein, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Mark Miller, UK

    Mark Miller, UK

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Jack Buzby, USA

    Jack Buzby, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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