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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Philip Brindle, England

    Philip Brindle, England

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Len Johnrose, England

    Len Johnrose, England

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • David Bishop, UK

    David Bishop, UK

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Jean Waters, UK

    Jean Waters, UK

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Olga, Argentina

    Olga, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Ann Nicol, USA

    Ann Nicol, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • John Russo, USA

    John Russo, USA
    final3878

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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