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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Anna Barrow, UK

    Anna Barrow, UK

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Phil Rossall, UK

    Phil Rossall, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Rosie Riley, USA

    Rosie Riley, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Denis Blais, Canada

    Denis Blais, Canada

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Mark Miller, UK

    Mark Miller, UK

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Jean Waters, UK

    Jean Waters, UK

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Michael Lee, Australia

    Michael Lee, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Olga, Argentina

    Olga, Argentina

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • JP

    JP

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Glen Elison, USA

    Glen Elison, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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