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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Paul Launer, USA

    Paul Launer, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • John Sweeney, USA

    John Sweeney, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Daniel Hare, USA

    Daniel Hare, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jason Goodman, USA

    Jason Goodman, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Mike Cels, Canada

    Mike Cels, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Timmy, Belgium

    Timmy, Belgium

  • Purningam Jacob, India

    Purningam Jacob, India

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Alex, Argentina

    Alex, Argentina

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Olga, Argentina

    Olga, Argentina

  • Michael Lee, Australia

    Michael Lee, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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