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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Mike Small, UK

    Mike Small, UK

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jay Epstein, USA

    Jay Epstein, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • JP

    JP

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jean Waters, UK

    Jean Waters, UK

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Rosie Riley, USA

    Rosie Riley, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Liam Dwyer, England

    Liam Dwyer, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Lee Millard, England

    Lee Millard, England

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Len Johnrose, England

    Len Johnrose, England

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Timmy, Belgium

    Timmy, Belgium

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Ali Var, Turkey

    Ali Var, Turkey

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Jon Newsome, USA

    Jon Newsome, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • David Bishop, UK

    David Bishop, UK

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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