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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Greg Heydet, USA

    Greg Heydet, USA

  • David Hall, USA

    David Hall, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Jack Buzby, USA

    Jack Buzby, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Paul Launer, USA

    Paul Launer, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • David Bishop, UK

    David Bishop, UK

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Jean Waters, UK

    Jean Waters, UK

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • John Russo, USA

    John Russo, USA
    final3878

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Jon Newsome, USA

    Jon Newsome, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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