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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Alex, Argentina

    Alex, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Daniel Hare, USA

    Daniel Hare, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Greg Heydet, USA

    Greg Heydet, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Susan Keldani, USA

    Susan Keldani, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Hollister

    Hollister
    hollister

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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