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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

View Calendar

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Len Johnrose, England

    Len Johnrose, England

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Timmy, Belgium

    Timmy, Belgium

  • Greg Heydet, USA

    Greg Heydet, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • JP

    JP

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Purningam Jacob, India

    Purningam Jacob, India

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • David Solomon, UK

    David Solomon, UK

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Jack Buzby, USA

    Jack Buzby, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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