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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • International Symposium

About

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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Paul Launer, USA

    Paul Launer, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Daniel Hare, USA

    Daniel Hare, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • JP

    JP

  • John Dinon, Australia

    John Dinon, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Sally Pauls, USA

    Sally Pauls, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Steve

    Steve

  • Ali Var, Turkey

    Ali Var, Turkey

  • Denis Blais, Canada

    Denis Blais, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Ian Gale, Australia

    Ian Gale, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • John Russo, USA

    John Russo, USA
    final3878

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jon Newsome, USA

    Jon Newsome, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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