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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Greg Heydet, USA

    Greg Heydet, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Jon Newsome, USA

    Jon Newsome, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Olga, Argentina

    Olga, Argentina

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Paul Launer, USA

    Paul Launer, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Sally Pauls, USA

    Sally Pauls, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Phil Rossall, UK

    Phil Rossall, UK

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Jack Buzby, USA

    Jack Buzby, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • JP

    JP

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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