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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Liam Dwyer, England

    Liam Dwyer, England

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Jean Waters, UK

    Jean Waters, UK

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Steve

    Steve

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Hollister

    Hollister
    hollister

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • John Sweeney, USA

    John Sweeney, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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