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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Jean Waters, UK

    Jean Waters, UK

  • Liam Dwyer, England

    Liam Dwyer, England

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • David Solomon, UK

    David Solomon, UK

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Hollister

    Hollister
    hollister

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Susan Anderson, USA

    Susan Anderson, USA

  • Bayley, Australia

    Bayley, Australia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • John Sweeney, USA

    John Sweeney, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Alex, Argentina

    Alex, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • John Dinon, Australia

    John Dinon, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Willi Klein, UK

    Willi Klein, UK

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Rosie Riley, USA

    Rosie Riley, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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