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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Staff
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • John Sweeney, USA

    John Sweeney, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Purningam Jacob, India

    Purningam Jacob, India

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • David Watson, Scotland

    David Watson, Scotland

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Mike Cels, Canada

    Mike Cels, Canada

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Olga, Argentina

    Olga, Argentina

  • Steve

    Steve

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Mike Small, UK

    Mike Small, UK

  • Dick Dayton, USA

    Dick Dayton, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Timmy, Belgium

    Timmy, Belgium

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Lee Millard, England

    Lee Millard, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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