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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Anna Barrow, UK

    Anna Barrow, UK

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Timmy, Belgium

    Timmy, Belgium

  • John Dinon, Australia

    John Dinon, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Ali Var, Turkey

    Ali Var, Turkey

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Anita Forte, USA

    Anita Forte, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Paul Launer, USA

    Paul Launer, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Dick Dayton, USA

    Dick Dayton, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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