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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • John Sweeney, USA

    John Sweeney, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Alex, Argentina

    Alex, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Art Eggert, USA

    Art Eggert, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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