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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Anita Forte, USA

    Anita Forte, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Bayley, Australia

    Bayley, Australia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Denis Blais, Canada

    Denis Blais, Canada

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Jean

    Jean
    jean

  • Mike Cels, Canada

    Mike Cels, Canada

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Jon Newsome, USA

    Jon Newsome, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Rob Tison, USA

    Rob Tison, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Olga, Argentina

    Olga, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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