The International Alliance of ALS/MND Associations has created this resource guide to help people interested in ALS/MND find information about the disease, care and research in their home country and language.
The Alliance has not evaluated all the information contained on sites listed here and in some cases has not checked that the links are currently operable. These resources are listed because trusted Alliance Members have recommended them. However, the Alliance cannot take responsibility for the information provided on external websites accessed through this resource guide.
Alper Kaya: Living with ALS/MND in Turkey
Topic: Patient Networks, Online Support Groups, BlogsLanguage: English | Turkish
ALS Assistive Technology Blog
Topic: Equipment, Communications and Assistive TechnologyLanguage: English
ALS Centrum Nederland
Topic: Basic and Clinical Research , For Clinicians , For Families and Caregivers , Navigating Healthcare Systems , What Is ALS/MND?Language: Dutch
ALS Therapy Development Institute – Research Center
Topic: Basic and Clinical ResearchLanguage: English
Carers Hub
Topic: Care and Support Guides and Manuals , For Families and Caregivers , For Youth and ChildrenLanguage: English
FYI: Informational factsheets and articles to help in living with ALS
Topic: Basic and Clinical Research , Care and Support Guides and Manuals , Equipment, Communications and Assistive Technology , For Families and Caregivers , Navigating Healthcare SystemsLanguage: English
Guias de Ayuda: Guias Para Cuidadores
Topic: For Clinicians , For Families and CaregiversLanguage: Spanish
Guias de Ayuda: La Familia y la ELA
Topic: Care and Support Guides and Manuals , For Families and Caregivers , For Youth and ChildrenLanguage: Spanish
Guias de Ayuda: Vivir con ELA (MND)
Topic: Care and Support Guides and Manuals , For Families and CaregiversLanguage: Spanish
Information brève sur la sclérose latérale amyotrophique (SLA)
Topic: What Is ALS/MND?Language: French
Information in Other Languages (MND Association)
Topic: Care and Support Guides and Manuals , For Families and CaregiversLanguage: Arabic | Bengali | Bulgarian | Chinese (Simplified) | Chinese (Traditional) | Gujarati | Korean | Mandarin | Polish | Portuguese | Punjabi | Romanian | Russian | Slovak | Somali | Spanish | Tamil | Turkish | Urdu | Welsh
La ELA Existe Blog – Venezuela
Topic: Patient Networks, Online Support Groups, BlogsLanguage: Spanish
Le diagnostic SLA : Que faire maintenant ?
Topic: For Families and Caregivers , What Is ALS/MND?Language: French
Leben mit ALS
Topic: Care and Support Guides and Manuals , For Families and CaregiversLanguage: German
Living with ALS Resource Guides
Topic: Care and Support Guides and Manuals , For Families and Caregivers , Navigating Healthcare SystemsLanguage: English
Living with ALS: Resources
Topic: Care and Support Guides and Manuals , For Families and CaregiversLanguage: English
Living with MND
Topic: Care and Support Guides and Manuals , For Families and CaregiversLanguage: English
Living with MND
Topic: Care and Support Guides and Manuals , Equipment, Communications and Assistive Technology , For Families and CaregiversLanguage: English
MND Care
Topic: Care and Support Guides and Manuals , For Clinicians , Navigating Healthcare SystemsLanguage: English
Noticias y Artículos de Apoyo Integral Gila, AC
Topic: Basic and Clinical ResearchLanguage: Spanish
Paralleltreffen für Betroffene und Angehörige (Switzerland)
Topic: For Families and Caregivers , Patient Networks, Online Support Groups, BlogsLanguage: German
Research at the Les Turner ALS Research and Patient Center at Northwestern Medicine
Topic: Basic and Clinical ResearchLanguage: English
The MND Research Institute of Australia (MNDRIA)
Topic: Basic and Clinical ResearchLanguage: English
Vivre avec la SLA
Topic: Care and Support Guides and Manuals , For Families and CaregiversLanguage: French
Vivre avec la SLA
Topic: Care and Support Guides and Manuals , For Families and CaregiversLanguage: French
What is motor neurone disease (Chinese)?
Topic: What Is ALS/MND?Language: Chinese (Simplified) | Chinese (Traditional)