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International Alliance of ALS/MND Associations

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    • Research
      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
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Recent Posts:

    Primary Sidebar

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • Dick Dayton, USA

      Dick Dayton, USA

    • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

      Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

    • Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

      Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

    • Mike Small, Motor Neurone Disease (MND) Association, UK

      Mike Small, Motor Neurone Disease (MND) Association, UK

    • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Ismail Gokcek, Turkey

      Ismail Gokcek, Turkey
      ismail_gokcek_alsmnd_tr

    • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

      Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

    • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

      Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

      Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

    • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

      Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

    • Wendy Hendrickson, ALS Hope Foundation, USA

      Wendy Hendrickson, ALS Hope Foundation, USA

    • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

      Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

      Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    • Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

      Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    • IMG_1211

      IMG_1211

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    • Ali Var, Turkey

      Ali Var, Turkey

    • Richard Clark, MND New Zealand,  Diagnosed 2011

      Richard Clark, MND New Zealand, Diagnosed 2011

    • Malcolm Buck, Australia

      Malcolm Buck, Australia

    • Chris McCauley, Diagnosed 2015 , ALS Canada

      Chris McCauley, Diagnosed 2015 , ALS Canada

    • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

      Wilfried Leusing, Diagnosed 2010 , DGM, Germany

    • Den Haag, Diagnosed 2016 , The Netherlands

      Den Haag, Diagnosed 2016 , The Netherlands

    • 83

      83

    • Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

      Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

    • Carlos Alberto Báez Murillo, ACELA, Colombia

      Carlos Alberto Báez Murillo, ACELA, Colombia

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Jon Newsome, USA

      Jon Newsome, USA

    • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

      Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

      Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • 727747090571358167

      727747090571358167

    • Alberto Baez Murillo, Colombia

      Alberto Baez Murillo, Colombia

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

      Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

    • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

      Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    • Paul Launer, USA

      Paul Launer, USA

    • Armando González Gómez, ACELA, Colombia

      Armando González Gómez, ACELA, Colombia

    • Mauril Belanger

      Mauril Belanger

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Roxana Canova, Diagnosed 2012 ,  Asociación ELA Argentina

      Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

    • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

      Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    • Enzo Maccarrone, AISLA ONLUS, Italy

      Enzo Maccarrone, AISLA ONLUS, Italy

    • Jan Zuring, Diagnosed 2010 , The Netherlands

      Jan Zuring, Diagnosed 2010 , The Netherlands

    • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Timothy Holman, Switzerland

      Timothy Holman, Switzerland

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Greg Heydet, ALS Hope Foundation, USA

      Greg Heydet, ALS Hope Foundation, USA

    Learn more about the March of Faces

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