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International Alliance of ALS/MND Associations

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      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
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Recent Posts:

    Primary Sidebar

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Christian Bär, Germany

      Christian Bär, Germany

    • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

      Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    • Imelda Arenas, ACELA, Colombia

      Imelda Arenas, ACELA, Colombia

    • Mauril Belanger

      Mauril Belanger

    • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

      Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

    • Guido De Mets, Belgium

      Guido De Mets, Belgium

    • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

      Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

    • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

      Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    • Oliver Juenke, DGM, Germany

      Oliver Juenke, DGM, Germany

    • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    • Dr Shelly Hoover

      Dr Shelly Hoover

    • Carlos Alberto Báez Murillo, ACELA, Colombia

      Carlos Alberto Báez Murillo, ACELA, Colombia

    • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

      Eddy LeFrançois, Diagnosed 1992, ALS Canada

    • Leon Ryba, Argentina

      Leon Ryba, Argentina

    • Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

      Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

      Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

    • Dick Dayton, USA

      Dick Dayton, USA

    • Daniel Hare

      Daniel Hare

    • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

      Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    • Zabun Nassar, MND Association, Diagnosed 2016, England

      Zabun Nassar, MND Association, Diagnosed 2016, England

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

      Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    • JP

      JP

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Michael Lee, Australia

      Michael Lee, Australia

    • Tison, USA

      Tison, USA

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    • Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

      Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

    • Irene McCaughey, Diagnosed 2011,  MND Australia

      Irene McCaughey, Diagnosed 2011, MND Australia

    • Shera Mukherjee, Diagnosed 2013,  Asha Ek Hope Foundation, India

      Shera Mukherjee, Diagnosed 2013, Asha Ek Hope Foundation, India

    • Timothy Holman, Switzerland

      Timothy Holman, Switzerland

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Lombana, Spain

      Lombana, Spain

    • Susan Keldani, Les Turner ALS Foundation, USA

      Susan Keldani, Les Turner ALS Foundation, USA

    • Juvenal Bayona Romero

      Juvenal Bayona Romero

    • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

      Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    • David Watson,  MND Scotland,  Diagnosed 2018

      David Watson, MND Scotland, Diagnosed 2018

    • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

      Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Andrietta

      Andrietta

    • Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

      Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

    • John Dinon, MND Australia

      John Dinon, MND Australia

    • Mike Rannie,  ALS Canada,  Diagnosed 2017

      Mike Rannie, ALS Canada, Diagnosed 2017

    • 727747090571358167

      727747090571358167

    • John and Loretta Russo, USA

      John and Loretta Russo, USA
      final3878

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

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