ALSUntangled reviews alternative and off label treatments (AOTs), with the goal of helping people with ALS make more informed decisions about them.
Basic and Clinical Research
This comprehensive list of fact sheets includes the categories: Benefits, Caregivers, Newly Diagnosed, For People with ALS, Home Care, Research/Clinics, Speech/Swallowing, Alternative Treatments, Veterans with ALS. (Where relevant, the resources linked here are specific to the United States healthcare system.)
People like you diagnosed with ALS play the most important role in the discovery and development of effective treatments and cures. Your participation in a clinical trial provides researchers with the data they need to determine whether or not a potential treatment ought to move closer to being available to all those with ALS. The ALS Therapy Development Institute is unbiased in listing clinical trials, providing information on all those enrolling worldwide. We encourage you to browse trials below and to subscribe to the clinical trial mailing list which will email you once a month with an update on changes to trials listed in this database.
Each month, ALS TDI brings together researchers from our lab and others for a conversation about an important topic to patients today. These can be on a specific trial, an emerging technology, or a broad theory gaining notoriety in the effort to combat ALS. These conversations are designed to ask these researchers direct questions and to provide a place where YOU and YOUR family can speak directly to those working on your behalf at ALS TDI and other labs. These webinars are recorded, but we encourage folks to join us live as your questions and interaction with these researchers is incredibly important.