Les personnes et les familles touchées par la SLA doivent surmonter le défi de s’adapter à une nouvelle manière de vivre. Vous trouverez ci-dessous quelques ressources qui vous aideront à composer avec les ramifications physiques, émotives, financières et juridiques d’un diagnostic de SLA.
Care and Support Guides and Manuals
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis.
This comprehensive list of fact sheets includes the categories: Benefits, Caregivers, Newly Diagnosed, For People with ALS, Home Care, Research/Clinics, Speech/Swallowing, Alternative Treatments, Veterans with ALS. (Where relevant, the resources linked here are specific to the United States healthcare system.)
The ALS Association’s Living with ALS Resource Guides were created because of the rapidly expanding information and research in the clinical management of ALS. These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.