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International Alliance of ALS/MND Associations

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Equipment, Communications and Assistive Technology

ALS Assistive Technology Blog

February 27, 2018 by

Alisa Brownlee, ATP, CAPS’ blog offers recent articles and web information on ALS, assistive technology, augmentative alternative communication (AAC), computer access, and other electronic devices that can impact and improve the quality of life for people with ALS. Email abrownlee@alsa-national.org. Any views or opinions presented on this blog are solely those of the author and do not necessarily represent those of The ALS Association.

Living with MND

February 27, 2018 by

This page explores how to manage daily living with MND. The challenges can feel overwhelming, but support and planning ahead can help you maintain the best possible quality of life. Categories include: Mobility and personal care; Speech and communication; Swallowing, eating and drinking; Relationships and family; Emotions, thinking and behavior; and Breathing and ventilation.

FYI: Informational factsheets and articles to help in living with ALS

February 27, 2018 by

This comprehensive list of fact sheets includes the categories: Benefits, Caregivers, Newly Diagnosed, For People with ALS, Home Care, Research/Clinics, Speech/Swallowing, Alternative Treatments, Veterans with ALS. (Where relevant, the resources linked here are specific to the United States healthcare system.)

Kommhelp

February 27, 2018 by

Kommhelp is a german nonprofit organization. They inform and counsel patients on free communication software. They also support patients in practical questions, such as how to choose and adapt the right tools.

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Allied Professionals Forum Registration

The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones on 3 – 4 December 2020.

Click here to register for the Allied Professionals Forum

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