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International Alliance of ALS/MND Associations

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What Is ALS/MND?

מהי מחלת ALS

March 2, 2018 by

ALS -Amyotrophic Lateral Sclerosis  הינה המחלה הקשה ביותר מקבוצת המחלות הניווניות הפוגעות בתאי העצב המוטוריים. המחלה נדירה וחשוכת מרפא. מחלה זו גם ידועה בשם מחלת “לו גריג” על שם שחקן כדור הבסיס אמריקאי שלקה במחלה בשנות השלושים. באנגליה היא מוכרת כמחלת תאי העצב המוטוריים (.M.N.D), ובצרפת כמחלת שרקו.

Wat Is ALS? Copy

February 28, 2018 by

Amyotrofische Laterale Sclerose (ALS) is een dodelijke zenuw-spierziekte die alle spiergroepen, met uitzondering van de autonoom aangestuurde spieren, kan aantasten. Een ALS-patiënt overlijdt gemiddeld 33 maand na de diagnose door verlamming van de ademhalings- of slikspieren. Er is echter een aanzienlijke spreiding in de uiteindelijke levensverwachting van ALS-patiënten.

What is MND?

February 27, 2018 by

Motor neurone disease (MND) describes a group of diseases that affect the nerves (motor neurones) in the brain and spinal cord that tell your muscles what to do. With MND, messages from these nerves gradually stop reaching the muscles, leading them to weaken, stiffen and waste. 

ALS-MNH Nedir

February 27, 2018 by

Bir kişiye ALS teşhisi konulduğunda hasta daha önce hiç bilmediği bir dünyaya adım atar. Kaldı ki sağlık görevlilerinin pek çoğu için bile yabancı bir dünyadır burası. Hasta,  nöroloji denen,  sinirlerle ilgili bilim dalının dilini anlamaya başladıkça her şey yerli yerine oturmaya başlayacaktır. Bu dünyanın da edinilmesi gereken deneyimleri, sıkıntıları olduğu kadar umutları da olduğu görülebilir çok geçmeden. Bu yazının hastalığı anlamaya hizmet etmesi dileğiyle…

ALS-MNH Hakkında Sık Sorulan Sorular

February 27, 2018 by

ALS hastalığı ile ilgili sık sorulan soruları aşağıdaki video bağlantıdan izleyebilirsiniz. 

 

Türkiye’deKaç ALS Hastası Var?

IceBucket Challenge (Buz Kovası Kampanyası) ve ALS

HamilelikteALS Bebeği Etkiler Mi?

ALSHastaları Hamile Kalabilir Mi?

ALSDerneği’nin Önemi

ALSCinsel Yaşamı Nasıl Etkiler?

ALSTedavi Edilebilir Mi?

ALSNasıl Anlaşılır? ALS Tanısı Nasıl Konulur?

ALS-MNHNedir?

ALSHastalığı Nasıl Seyreder? ALS Hastaları Neler Yaşar?

ALSGenetik Midir?

ALSBulaşıcı Mıdır? ALS Belirtileri Nelerdir?

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